Background: Patient-directed selection and sharing of health information “granules” is known as granular information sharing. In a previous study, patients with behavioral health conditions categorized their own health information into sensitive categories (eg, mental health) and chose the health professionals (eg, pharmacists) who should have access to those records. Little is known about behavioral health professionals’ perspectives of patient-controlled granular information sharing (PC-GIS). Objective: This study aimed to assess behavioral health professionals’ (1) understanding of and opinions about PC-GIS; (2) accuracy in assessing redacted medical information; (3) reactions to patient rationale for health data categorization, assignment of sensitivity, and sharing choices; and (4) recommendations to improve PC-GIS. Methods: Four 2-hour focus groups and pre- and postsurveys were conducted at 2 facilities. During the focus groups, outcomes from a previous study on patients’ choices for medical record sharing were discussed. Thematic analysis was applied to focus group transcripts to address study objectives. Results: A total of 28 health professionals were recruited. Over half (14/25, 56%) were unaware or provided incorrect definitions of granular information sharing. After PC-GIS was explained, all professionals demonstrated understanding of the terminology and process. Most (26/32 codes, 81%) recognized that key medical data had been redacted from the study case. A majority (41/62 codes, 66%) found the patient rationale for categorization and data sharing choices to be unclear. Finally, education and other approaches to inform and engage patients in granular information sharing were recommended. Conclusions: This study provides detailed insights from behavioral health professionals on granular information sharing. Outcomes will inform the development, deployment, and evaluation of an electronic consent tool for granular health data sharing. Trial Registration:

中文翻译：

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行为健康专家对患者控制的颗粒信息共享的看法（第 2 部分）：焦点小组研究

背景：以患者为导向的健康信息“颗粒”选择和共享被称为颗粒信息共享。在之前的一项研究中，患有行为健康问题的患者将自己的健康信息分类为敏感类别（例如，心理健康），并选择应该有权访问这些记录的卫生专业人员（例如，药剂师）。关于行为健康专业人员对患者控制的细粒度信息共享 (PC-GIS) 的看法知之甚少。客观的：本研究旨在评估行为健康专业人员 (1) 对 PC-GIS 的理解和意见；(2) 评估编辑的医疗信息的准确性；(3) 对健康数据分类、敏感性分配和共享选择的患者基本原理的反应；(4) 改进 PC-GIS 的建议。方法：在 2 个设施进行了四个 2 小时的焦点小组和前后调查。在焦点小组中，讨论了先前关于患者选择病历共享的研究的结果。主题分析被应用于焦点小组的成绩单，以解决研究目标。结果：共招募了28名卫生专业人员。超过一半 (14/25, 56%) 不知道或提供了不正确的细粒度信息共享定义。在解释了 PC-GIS 之后，所有专业人员都表现出对术语和流程的理解。大多数人（26/32 代码，81%）认识到关键医疗数据已从研究案例中删除。大多数人（41/62 代码，66%）认为患者分类和数据共享选择的理由不清楚。最后，建议通过教育和其他方法告知患者并让患者参与细粒度的信息共享。结论：这项研究提供了行为健康专业人士对细粒度信息共享的详细见解。结果将为用于精细健康数据共享的电子同意工具的开发、部署和评估提供信息。试用注册：