ABSTRACT

People with cystic fibrosis experience rates of anxiety and depression that are considerably higher than those of the general population. Research suggests low mental health functioning can lead to poor health outcomes and quality of life for this population. Consequently, recognition of the need for routine mental health screening and referral in cystic fibrosis care is increasing. Yet to date, less is known about the actual mental health care needs of people with cystic fibrosis. This scoping review sought to address this gap by examining the mental health care needs of adults and adolescents living with cystic fibrosis, and how are these needs are (or are not) being met. Findings suggest current efforts at mental health care provision do not adequately meet the needs of people with cystic fibrosis, highlighting the urgency of conducting high quality intervention research to support effective mental health care for this population.

摘要

患有囊性纤维化的人的焦虑和抑郁发生率远高于普通人群。研究表明，心理健康功能低下会导致该人群的健康状况和生活质量不佳。因此，人们越来越认识到在囊性纤维化护理中对常规心理健康筛查和转诊的需求正在增加。然而，迄今为止，人们对囊性纤维化患者的实际心理保健需求知之甚少。该范围审查旨在通过检查患有囊性纤维化的成年人和青少年的心理保健需求以及如何满足（或未满足）这些需求来解决这一差距。研究结果表明，目前在提供精神卫生保健方面所做的努力并不能充分满足囊性纤维化患者的需求，