ABSTRACT

People with cystic fibrosis experience rates of anxiety and depression that are considerably higher than those of the general population. Research suggests low mental health functioning can lead to poor health outcomes and quality of life for this population. Consequently, recognition of the need for routine mental health screening and referral in cystic fibrosis care is increasing. Yet to date, less is known about the actual mental health care needs of people with cystic fibrosis. This scoping review sought to address this gap by examining the mental health care needs of adults and adolescents living with cystic fibrosis, and how are these needs are (or are not) being met. Findings suggest current efforts at mental health care provision do not adequately meet the needs of people with cystic fibrosis, highlighting the urgency of conducting high quality intervention research to support effective mental health care for this population.

 抽象的

囊性纤维化患者的焦虑和抑郁发生率明显高于一般人群。研究表明，心理健康功能低下可能会导致该人群的健康结果和生活质量不佳。因此，人们越来越认识到在囊性纤维化护理中进行常规心理健康筛查和转诊的必要性。然而迄今为止，人们对囊性纤维化患者的实际心理保健需求知之甚少。本次范围界定审查旨在通过检查患有囊性纤维化的成人和青少年的心理保健需求以及这些需求如何得到（或未得到）满足来解决这一差距。研究结果表明，目前在提供精神卫生保健方面的努力并不能充分满足囊性纤维化患者的需求，这凸显了开展高质量干预研究以支持对该人群进行有效的精神卫生保健的紧迫性。