The key aim of this paper is to highlight the oft-under-represented narrative of how persons with disabilities (specifically, those with intellectual disabilities) may access the benefits that genome editing may offer. Firstly, this paper reflects on the critical need for a paradigm shift in how we view intellectual disabilities, and centering the rights of persons with disabilities to allow them to access the broad scope of their right to health under various international law instruments (including the complementary right to habilitation under Article 26 of the CRPD). Secondly, the paper evaluates the legal provisions in the CRPD and other international instruments relating to the rights of persons with intellectual disabilities, and their access to genome editing technologies. This analysis intends to demonstrate that human rights in disability discourse be complemented with emancipatory, participatory, and transformative research. Finally, the paper argues for a reinvigorated line of thinking that expands on the social model of disability: to align with inclusive, contemporary disability discourse that embodies greater responsibility and innovation in perpetuating better access to genome editing technologies for persons with intellectual disabilities.

本文的主要目的是强调有关残疾人（特别是智力障碍者）如何获得基因组编辑可能带来的好处的经常被忽视的叙述。首先，本文反思了我们看待智力障碍的范式转变的迫切需要，并以残疾人的权利为中心，使他们能够根据各种国际法文书（包括补充性法律文书）获得广泛的健康权。《残疾人权利公约》第 26 条规定的适应权）。其次，本文评估了《残疾人权利公约》和其他国际文书中有关智障人士权利及其获取基因组编辑技术的法律条款。本分析旨在证明残疾人话语中的人权可以通过解放性、参与性和变革性研究来补充。最后，本文提出了一种扩展残疾社会模式的新思路：与包容性的当代残疾话语保持一致，体现更大的责任和创新，让智障人士更好地获得基因组编辑技术。