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Genome Editing: Learning from Its Past and Envisioning Its Future
European Journal of Health Law ( IF 0.6 ) Pub Date : 2022-04-08 , DOI: 10.1163/15718093-bja10081
Judit Sandor 1
Affiliation  

With the technical possibility of genome editing, we have reached a new phase of transforming human beings and even altering our genetic legacy. Genome editing constitutes new responsibilities in many fields. Science and society have never been as dependent on each other as they are today. We must also learn from the past episodes of eugenics and we need to investigate fraudulent practices and cases of failure in scientific research that have often occurred due to merciless scientific competition, profit-seeking commercial interests, or individual pride. Genome editing raises numerous legal questions, such as: Would it be possible to make a legal difference between specific versions of gene editing? Who decides on what is considered a disease or an anomaly, a condition, or a variation? Which diseases are worth being corrected or treated and which ones are not? What kinds of social implications will gene editing bring about when it becomes widely available? Some normative distinctions have already been made in the case of gene therapy: separating somatic from germline interventions. But this distinction has not yet been analyzed in the light of the most recent editing practices. Genome editing also realigns the structure of ethical debates. It makes us rethink the concept of discrimination and scrutinize its cases in the field of assisted reproductive procedures. It revolutionizes the concept of medical treatment. It may increase or reduce inequalities based on health conditions. It may lead to numerous new rights in the field of genetics. Good genome editing practice can only be achieved through the close cooperation between the natural and social sciences. The present paper will endeavor to examine this new form of dialogue.



中文翻译:

基因组编辑:汲取过去的教训并展望未来

凭借基因组编辑的技术可能性,我们已经进入了改造人类甚至改变我们遗传遗产的新阶段。基因组编辑在许多领域构成了新的责任。科学与社会从未像今天这样相互依赖。我们还必须从过去的优生事件中吸取教训,我们需要调查因无情的科学竞争、逐利的商业利益或个人骄傲而经常发生的科研欺诈行为和失败案例。基因组编辑引发了许多法律问题,例如:是否有可能在基因编辑的特定版本之间做出法律差异?谁来决定什么被视为疾病、异常、状况或变异?哪些疾病值得纠正或治疗,哪些不值得?当基因编辑广泛应用时,会带来哪些社会影响?在基因治疗方面已经做出了一些规范性的区分:将体细胞干预与种系干预分开。但这种区别尚未根据最新的编辑实践进行分析。基因组编辑还重新调整了伦理辩论的结构。它让我们重新思考歧视的概念,并审视辅助生殖领域的案例。它彻底改变了医疗理念。它可能会根据健康状况增加或减少不平等。它可能会带来遗传学领域的许多新权利。良好的基因组编辑实践只能通过自然科学和社会科学的密切合作才能实现。本文将努力探讨这种新的对话形式。

更新日期:2022-04-08
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