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Martial Arts Training for Boys With Duchenne Muscular Dystrophy
Pediatric Exercise Science ( IF 1.4 ) Pub Date : 2022-04-07 , DOI: 10.1123/pes.2021-0117
Maarten K N Stessel 1 , Imelda J M de Groot 1 , Mariska M H P Janssen 1
Affiliation  

Purpose: The primary aim of this pilot study was to investigate the safety and feasibility of a 3-month martial arts-based training (MAT) program for patients with Duchenne muscular dystrophy (DMD). The secondary aim was to examine changes in physical and psychosocial abilities after participating in the MAT program. Methods: Twelve patients with DMD (10 ambulant and 2 nonambulant) were included. The MAT program was evaluated on feasibility and safety. Changes in physical abilities were measured using the Motor Function Measure, Performance of Upper Limb scale, and the North Star Ambulatory Assessment. Changes in psychosocial abilities were measured using the Strength and Difficulties Questionnaire, Personal Adjustment and Role Skills for DMD, and the Self-Perception Profile for Children/Adolescents. Results: Two participants did not complete the MAT program. Attendance rate for the 10 remaining participants was 91%. Eleven falls were reported during the training, but these falls did not result in injuries. Therefore, the MAT program was found feasible and safe. After completing the MAT program, most participants showed an improvement of their psychosocial abilities, and their physical abilities did not show deterioration. Conclusion: The MAT program is feasible and safe for boys with DMD.



中文翻译:

杜氏肌营养不良症男孩的武术训练

目的:本试点研究的主要目的是调查针对杜氏肌营养不良症 (DMD) 患者的为期 3 个月的基于武术的训练 (MAT) 计划的安全性和可行性。次要目的是检查参加 MAT 计划后身体和社会心理能力的变化。方法:包括 12 名患有 DMD 的患者(10 名能走动,2 名不能走动)。对 MAT 计划的可行性和安全性进行了评估。使用运动功能测量、上肢性能量表和北极星动态评估来测量身体能力的变化。使用力量和困难问卷、DMD 的个人调整和角色技能以及儿童/青少年的自我认知概况来衡量社会心理能力的变化。结果:两名参与者没有完成垫子程序。其余 10 名参与者的出席率为 91%。训练期间报告了 11 次跌倒,但这些跌倒并未导致受伤。因此,MAT 程序被认为是可行和安全的。在完成 MAT 课程后,大多数参与者表现出心理社会能力的提高,而身体能力并没有下降。结论: MAT 项目对于患有 DMD 的男孩是可行和安全的。

更新日期:2022-04-07
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