PURPOSE/OBJECTIVE Although the concept of quality of life (QoL) has become a reference framework for the provision of support and services to people with intellectual disability (ID), its conceptualization and application for persons with Down syndrome (DS) have received little attention. This study analyzed QoL outcomes in children and young people with DS and examined the influence of several individual and environmental variables on QoL. RESEARCH METHOD/DESIGN A cross-sectional study was conducted. Participants were 404 children and young people with DS aged 4 to 21 who were users of 73 organizations providing services to people with ID. The KidsLife-Down Scale was used to assess QoL-related personal outcomes perceived by professionals and relatives. Descriptive statistics were calculated. Correlation coefficients were computed and multiple regression analyses were conducted for each QoL domain and for the composite score. RESULTS The highest scores were obtained in material well-being, physical well-being, and rights, whereas the lowest scores were observed in self-determination and social inclusion. Multiple regression analyses showed that age, level of ID, level of support needs, degree of dependency, type of schooling, and size of organization were predicting factors of scores in QoL domains. CONCLUSIONS This study underlines priority areas and relevant variables that must be considered when planning, implementing, and assessing supports and services to improve the QoL of children and young people with DS. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

中文翻译：

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唐氏综合症年轻人个人生活质量的预测因子。

目的/目标 虽然生活质量 (QoL) 的概念已成为为智障 (ID) 人提供支持和服务的参考框架，但其概念化和在唐氏综合症 (DS) 患者中的应用却很少受到关注. 本研究分析了患有 DS 的儿童和年轻人的生活质量结果，并检查了几个个人和环境变量对生活质量的影响。研究方法/设计进行了横断面研究。参与者是 404 名年龄在 4 至 21 岁的儿童和青少年，他们是 73 个为 ID 患者提供服务的组织的用户。KidsLife-Down Scale 用于评估专业人士和亲属感知的与生活质量相关的个人成果。计算描述性统计。计算了相关系数，并对每个 QoL 域和综合得分进行了多元回归分析。结果 在物质福利、身体健康和权利方面得分最高，而在自决和社会包容方面得分最低。多元回归分析表明，年龄、ID 水平、支持需求水平、依赖程度、学校教育类型和组织规模是 QoL 领域得分的预测因素。结论 本研究强调了在规划、实施和评估支持和服务以改善 DS 儿童和青少年生活质量时必须考虑的优先领域和相关变量。（PsycInfo 数据库记录 (c) 2022 APA，保留所有权利）。