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It’s All in the Head: Illness Perception is the Major Correlate of Quality of Life Among Adolescents with Inflammatory Bowel Disease
Child and Adolescent Social Work Journal ( IF 1.4 ) Pub Date : 2022-02-24 , DOI: 10.1007/s10560-022-00823-x
Adi Pachter-Alt 1, 2 , Varda Soskolne 3
Affiliation  

Living with an inflammatory bowel disease (IBD), while also navigating the demands of adolescence, may present a challenge for the quality of life (QoL) of adolescents. The current study examined the direct and indirect associations of the stressor (illness severity), cognitive appraisal (illness perception), personal (self-efficacy, positive affect, social support) and family coping resources (economic situation, family functioning) with adolescents' QoL. This cross-sectional study was conducted in Israel. Participants were 74 adolescents (44 boys, 30 girls; aged 11–18 years old) living with IBD, who completed a self-report questionnaire during a clinic follow-up visit. Illness severity was not directly associated with QoL, and no mediating effects through illness perception or coping resources were found; however, social support moderated the association between illness severity and QoL. Additionally, illness perception had the highest direct contribution to QoL: adolescents who perceived their illness as a threat showed poorer QoL. This association was also moderated by social support. Social workers in multidisciplinary healthcare teams may contribute to the improvement of QoL among adolescents with IBD by conducting regular QoL screenings, encouraging adolescents to re-frame their perceptions of their illness, and fostering the receipt of social support using individual or child-parent education sessions and CBT interventions.



中文翻译:

一切尽在脑海:疾病认知是炎症性肠病青少年生活质量的主要相关因素

患有炎症性肠病 (IBD) 的同时还要应对青春期的需求,这可能对青少年的生活质量 (QoL) 构成挑战。目前的研究检查了压力源(疾病严重程度)、认知评估(疾病感知)、个人(自我效能、积极影响、社会支持)和家庭应对资源(经济状况、家庭功能)与青少年的直接和间接关联。生活质量。这项横断面研究是在以色列进行的。参与者是 74 名患有 IBD 的青少年(44 名男孩,30 名女孩;年龄在 11-18 岁),他们在诊所随访期间完成了一份自我报告问卷。疾病严重程度与生活质量没有直接关系,并且没有发现通过疾病感知或应对资源的中介作用;然而,社会支持调节了疾病严重程度与生活质量之间的关联。此外,疾病感知对生活质量的直接贡献最高:将疾病视为威胁的青少年表现出较差的生活质量。这种关联也受到社会支持的调节。多学科医疗团队中的社会工作者可能会通过定期进行生活质量筛查、鼓励青少年重新构建他们对疾病的看法以及通过个人或儿童家长教育课程促进获得社会支持来帮助改善 IBD 青少年的生活质量和 CBT 干预。这种关联也受到社会支持的调节。多学科医疗团队中的社会工作者可能会通过定期进行生活质量筛查、鼓励青少年重新构建他们对疾病的看法以及通过个人或儿童家长教育课程促进获得社会支持来帮助改善 IBD 青少年的生活质量和 CBT 干预。这种关联也受到社会支持的调节。多学科医疗团队中的社会工作者可能会通过定期进行生活质量筛查、鼓励青少年重新构建他们对疾病的看法以及通过个人或儿童家长教育课程促进获得社会支持来帮助改善 IBD 青少年的生活质量和 CBT 干预。

更新日期:2022-02-24
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