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Shared decision making in inclusive research: Reflections from an inclusive research team
British Journal of Learning Disabilities ( IF 1.238 ) Pub Date : 2022-02-07 , DOI: 10.1111/bld.12450
Kristel Vlot‐van Anrooij 1 , Tessa K. Frankena 2 , Anneke Cruijsen 1 , Henk Jansen 1 , Jenneken Naaldenberg 1 , Kirsten E. Bevelander 1
Affiliation  

Health research is increasingly conducted with the active involvement of the people who are the focus of the research. People with intellectual disabilities also participate actively in research; this is called inclusive research. Collaboration in inclusive research teams requires shared decision-making (SDM). Although inclusive studies frequently refer to decision-making as something the research team does together, the decision-making process is still a black box. This study aims to provide more insight into SDM in inclusive research by reflecting on a 3-year collaboration in an inclusive research team. The research questions are: (1) What kinds of decisions were made by the inclusive research team? (2) How were decisions made by the inclusive research team? (3) What impact did the decisions have on the research project?

中文翻译:

包容性研究中的共同决策:包容性研究团队的反思

越来越多的健康研究是在作为研究重点的人的积极参与下进行的。智障人士也积极参与研究;这称为包容性研究。包容性研究团队的协作需要共同决策 (SDM)。尽管包容性研究经常将决策制定称为研究团队一起做的事情,但决策过程仍然是一个黑匣子。本研究旨在通过反思包容性研究团队中为期 3 年的合作,为包容性研究中的 SDM 提供更多见解。研究问题是:(1)包容性研究团队做出了什么样的决定?(2) 包容性研究团队是如何做出决定的?(3) 这些决定对研究项目有什么影响?
更新日期:2022-02-07
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