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“We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis
Clinical Psychology Review ( IF 12.8 ) Pub Date : 2022-02-09 , DOI: 10.1016/j.cpr.2022.102131
Janina Brede 1 , Eilidh Cage 2 , Joseph Trott 3 , Lisa Palmer 4 , Anika Smith 4 , Lucy Serpell 5 , Will Mandy 1 , Ailsa Russell 6
Affiliation  

Co-occurring mental health difficulties among autistic adults are common and this association has implications for mental health services. Gaining a comprehensive understanding of autistic adults' experiences of accessing and receiving mental health support is a critical step to fully inform service provision. We conducted a systematic review and meta-synthesis of qualitative studies exploring autistic adults' mental health service experiences, triangulating the perspectives of autistic adults, clinicians and parents. Electronic database searches in MEDLINE, PsycINFO and Embase were conducted up to October 2021. This identified 10,068 studies, of which 38 met study inclusion criteria. Using a thematic synthesis approach, we generated three superordinate analytical themes “Lonely, difficult service experience”, “Complexity needs flexibility” and “Collaboration and empowerment”, each with several subthemes. Our findings show that currently, mental health services do not adequately support autistic adults, and can even cause additional harm. There is a need for a more flexible, comprehensive and holistic approach, considering how being autistic affects the individual's mental health presentation and tailoring support to their needs. Building trusting relationships, listening to autistic adults, and empowering them to take agency, appear to be fundamental steps towards more successful mental health care provision.



中文翻译:

“我们必须设法找到一条路,一座临床桥梁”——自闭症成年人获得和接受心理健康困难支持的经验:系统评价和主题综合综合

自闭症成人中同时发生的心理健康问题很常见,这种关联对心理健康服务有影响。全面了解自闭症成年人获得和接受心理健康支持的经历是全面了解服务提供的关键步骤。我们对探索自闭症成人心理健康服务经验的定性研究进行了系统回顾和综合综合,对自闭症成人、临床医生和父母的观点进行了三角测量。截至 2021 年 10 月,MEDLINE、PsycINFO 和 Embase 中的电子数据库搜索进行了。这确定了 10,068 项研究,其中 38 项符合研究纳入标准。使用主题综合的方法,我们生成了三个上位分析主题“孤独,困难的服务体验”,“复杂性需要灵活性”和“协作与授权”,每个都有几个子主题。我们的研究结果表明,目前,心理健康服务不足以支持自闭症成年人,甚至可能造成额外伤害。考虑到自闭症如何影响个人的心理健康表现并根据他们的需求量身定制支持,需要一种更灵活、全面和整体的方法。建立信任关系,倾听自闭症成年人的心声,并赋予他们采取代理权的能力,似乎是迈向更成功的精神卫生保健提供的基本步骤。综合和整体的方法,考虑自闭症如何影响个人的心理健康表现并根据他们的需求量身定制支持。建立信任关系,倾听自闭症成年人的心声,并赋予他们采取代理权的能力,似乎是迈向更成功的精神卫生保健提供的基本步骤。综合和整体的方法,考虑自闭症如何影响个人的心理健康表现并根据他们的需求量身定制支持。建立信任关系,倾听自闭症成年人的心声,并赋予他们采取代理权的能力,似乎是迈向更成功的精神卫生保健提供的基本步骤。

更新日期:2022-02-09
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