ABSTRACT

Researching the experiences of children reliant on family caregivers is methodologically and ethically challenging. Conducting feminist digital ethnography within this context requires rethinking established feminist methods, including problematizing the assumptions of autonomy and individualism that undergird notions of decision making. In this paper, I explore ethical decision-making within the context of multi-voice care teams for children with feeding tubes who require long-term care. Within geography, my work builds on previous discussions of ethics and feminist methodology by examining the tensions between the emancipatory goals of feminist scholarship and the operationalization of those goals within marginalized populations like children and youth dependent on medical technology.

摘要

研究依赖家庭照顾者的儿童的经历在方法上和伦理上都具有挑战性。在这种背景下开展女权主义数字民族志需要重新思考已确立的女权主义方法，包括将支撑决策概念的自治和个人主义假设问题化。在本文中，我探讨了在多语音护理团队的背景下，为需要长期护理的饲管儿童做出的道德决策。在地理学中，我的工作建立在先前关于伦理和女权主义方法论的讨论的基础上，通过研究女权主义学术的解放目标与这些目标在依赖医疗技术的儿童和青年等边缘化人群中的实施之间的紧张关系。