Dementia is a chronic neurodegenerative disease with loss of memory, problem-solving and other cognitive abilities that are severe enough to interfere with daily life of older people. According to Alzheimer’s Disease International,¹ there were about four thousand people living with dementia in Macao and it was expected that the number of people living with dementia would increase rapidly, resulting of increases in life expectancy at birth over the past years.² In response to the significant health and social burden incurred by dementia, Macao Special Administrative Region Government had launched Macao Dementia Policy which included a 10-year strategic framework to build dementia friendly community and integrated health and social services in 2016,³ of which the Macao Dementia Registry (MDR) was a powerful tool for monitoring of clinical care to facilitate population-level surveillance over time. Methods of identifying cases of dementia differentiated between registries but usually included reporting from clinics and hospitals. However, diagnosis occurred in a variety of settings and inclusive of the whole population could be challenging for a dementia registry. Therefore, understanding and studying the cohort with dementia captured within the registry could significantly contribute to the understanding of health service use, medicines, hospitalizations, mortality and other information.⁴ The current evaluation had examined (1) the demographic and clinical characteristics of people living with dementia and (2) the comparability of data captured in the MDR dementia registry with selected established international dementia registries. This would allow for better understanding of the characteristics and limitations of this MDR cohort for monitoring the quality of care and outcomes for people living with dementia in Macao.

中文翻译：

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群组概况：澳门认知障碍症资料库


痴呆症是一种慢性神经退行性疾病，会导致记忆力、解决问题和其他认知能力的丧失，严重程度足以干扰老年人的日常生活。据国际阿尔茨海默病协会统计， ¹澳门约有四千名痴呆症患者，预计随着过去几年出生预期寿命的增加，痴呆症患者人数将迅速增加。 ²为应对痴呆症带来的重大健康和社会负担，澳门特别行政区政府于 2016 年推出了《澳门痴呆症政策》，其中包括建设痴呆症友好社区和综合健康和社会服务的十年战略框架，其中³澳门痴呆症登记处（MDR）是监测临床护理的强大工具，有利于人口层面的长期监测。不同登记处识别痴呆病例的方法有所不同，但通常包括诊所和医院的报告。然而，诊断发生在各种环境中并且涵盖整个人群，这对于痴呆症登记来说可能具有挑战性。因此，了解和研究登记处捕获的痴呆症队列可以极大地有助于了解卫生服务的使用、药物、住院、死亡率和其他信息。 ⁴当前的评估审查了 (1) 痴呆症患者的人口和临床特征，以及 (2) MDR 痴呆症登记处获取的数据与选定的已建立的国际痴呆症登记处的可比性。 这将有助于更好地了解该 MDR 队列的特征和局限性，以监测澳门痴呆症患者的护理质量和结果。