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The presence of a secondary caregiver differentiates primary cancer caregiver well-being.
Supportive Care in Cancer ( IF 2.8 ) Pub Date : 2021-09-21 , DOI: 10.1007/s00520-021-06544-8
Maria D Thomson 1 , Maureen Wilson-Genderson 2 , Laura A Siminoff 2
Affiliation  

BACKGROUND Informal caregivers play a fundamental role in the care of hematological cancer patients, but less is known about how secondary caregivers are involved. We assessed the presence or absence of a secondary caregiver, the types of caregiving activities performed by primary and secondary caregivers, and examined whether the presence of a secondary caregiver was associated with primary caregiver characteristics and well-being over time. METHODS A case series of hematological cancer patient-caregiver dyads (n = 171) were recruited from oncology clinics in Virginia and Pennsylvania and followed for 2 years. Multilevel models were developed to examine the associations between the presence of a secondary caregiver and the primary caregivers' well-being. RESULTS Most (64.9%) primary caregivers reported having secondary caregivers. Multilevel models showed primary caregivers without help had higher baseline mental and physical health, but experienced deteriorating physical health over time, compared to supported primary caregivers. Supported primary caregivers reported improvements in mental health over time that was associated with improvements in physical health. CONCLUSIONS Primary caregivers in good physical and mental health at the beginning of their caregiving journey but who have the least assistance from others may be at greatest risk for detrimental physical health effects long term. Attention to the arrangement of caregiving roles (i.e., who provides what care) over time is needed to ensure that caregivers remain healthy and well supported.

中文翻译:

二级护理人员的存在区分了主要癌症护理人员的幸福感。

背景非正式护理人员在血液癌症患者的护理中发挥着重要作用,但对于二级护理人员如何参与的了解较少。我们评估了二级照顾者的存在与否、主要和二级照顾者进行的照顾活动的类型,并检查了二级照顾者的存在是否与主要照顾者的特征和长期幸福感相关。方法 从弗吉尼亚州和宾夕法尼亚州的肿瘤诊所招募了一组血液癌症患者-护理人员 (n = 171) 的病例系列,并随访了 2 年。开发了多层次模型来检查二级照顾者的存在与主要照顾者的幸福感之间的关联。结果 大多数(64.9%)主要照顾者报告有次要照顾者。多层次模型显示,与支持的主要照顾者相比,没有帮助的主要照顾者具有更高的基线心理和身体健康,但随着时间的推移身体健康状况恶化。受支持的初级护理人员报告说,随着时间的推移,心理健康的改善与身体健康的改善有关。结论 在开始看护旅程时身体和心理健康状况良好但从他人获得最少帮助的主要看护者可能面临长期有害身体健康影响的最大风险。随着时间的推移,需要注意护理角色的安排(即谁提供什么护理),以确保护理人员保持健康并得到良好的支持。但与受支持的主要照顾者相比,随着时间的推移,身体健康状况不断恶化。受支持的初级护理人员报告说,随着时间的推移,心理健康的改善与身体健康的改善有关。结论 在开始看护旅程时身体和心理健康状况良好但从他人获得最少帮助的主要看护者可能面临长期有害身体健康影响的最大风险。随着时间的推移,需要注意护理角色的安排(即谁提供什么护理),以确保护理人员保持健康并得到良好的支持。但与受支持的主要照顾者相比,随着时间的推移,身体健康状况不断恶化。受支持的初级护理人员报告说,随着时间的推移,心理健康的改善与身体健康的改善有关。结论 在开始看护旅程时身体和心理健康状况良好但从他人获得最少帮助的主要看护者可能面临长期有害身体健康影响的最大风险。随着时间的推移,需要注意护理角色的安排(即谁提供什么护理),以确保护理人员保持健康并得到良好的支持。结论 在开始看护旅程时身体和心理健康状况良好但从他人获得最少帮助的主要看护者可能面临长期有害身体健康影响的最大风险。随着时间的推移,需要注意护理角色的安排(即谁提供什么护理),以确保护理人员保持健康并得到良好的支持。结论 在开始看护旅程时身体和心理健康状况良好但从他人获得最少帮助的主要看护者可能面临长期有害身体健康影响的最大风险。随着时间的推移,需要注意护理角色的安排(即谁提供什么护理),以确保护理人员保持健康并得到良好的支持。
更新日期:2021-09-21
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