INTRODUCTION Metastatic breast cancer (MBC) patients have several unmet needs. The needs and quality of life of MBC women living in sub-Saharan Africa (SSA) are understudied. Facilitating the interaction of various caregivers is beneficial in addressing the needs. Internet-based resources play an important role in reaching out to these patients. We aimed to bring the various stakeholders into a joint network force, create a web-based portal, understand the needs of MBC patients, and assess the utilization of web-based resources for women from Kenya. METHODS A network of various stakeholders considered crucial in the care of Kenyan women with MBC was created. We conducted educational camps and assessed their needs, quality of life (QoL), and knowledge. We assessed the impact of utilizing web-based resources by MBC patients from here. RESULTS We formed a network involving partners and launched the first dedicated website for MBC from Kenya. The website has received 13,944 visits and 310,379 hits in 2 years. One hundred fourteen women living with MBC were interviewed, and our findings show that psychological needs (63%), physical support needs (60%), and health care system needs (55%) are leading areas of needs that increase with rural residence (p = 0.001), less education (p = 0.003), and aggressive treatments (p = 0.008). Quality of life (QoL) confirmed better scores with urban residence (p = 0.002), internet access (p = 0.010), and stable disease (p = 0.042). CONCLUSIONS Creating a network of caregivers provides opportunities for cohesive efforts in understanding the psychosocial and medical needs of patients with MBC. Internet-based resources are an effective way of reaching out to them. Kenyan patients show extremely good uptake of internet-based resources.

中文翻译：

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通过网络支持患有晚期乳腺癌的肯尼亚妇女，并评估她们的需求和生活质量。

引言 转移性乳腺癌 (MBC) 患者有几个未满足的需求。生活在撒哈拉以南非洲 (SSA) 的 MBC 女性的需求和生活质量没有得到充分研究。促进不同照顾者的互动有利于满足需求。基于互联网的资源在接触这些患者方面发挥着重要作用。我们旨在将各种利益相关者纳入一个联合网络力量，创建一个基于网络的门户，了解 MBC 患者的需求，并评估来自肯尼亚的女性对网络资源的利用情况。方法 创建了一个由各种利益相关者组成的网络，这些利益相关者被认为对肯尼亚 MBC 女性的护理至关重要。我们举办了教育营并评估了他们的需求、生活质量 (QoL) 和知识。我们从这里评估了 MBC 患者使用基于网络的资源的影响。结果 我们建立了一个涉及合作伙伴的网络，并在肯尼亚推出了第一个 MBC 专用网站。该网站在 2 年内获得了 13,944 次访问和 310,379 次点击。采访了 114 名患有 MBC 的女性，我们的研究结果表明，心理需求（63%）、身体支持需求（60%）和医疗保健系统需求（55%）是随着农村居住而增加的主要需求领域（ p = 0.001）、较少的教育（p = 0.003）和积极的治疗（p = 0.008）。生活质量 (QoL) 证实城市居住 (p = 0.002)、互联网接入 (p = 0.010) 和疾病稳定 (p = 0.042) 得分更高。结论 创建护理人员网络为了解 MBC 患者的社会心理和医疗需求提供了凝聚力的机会。基于互联网的资源是联系他们的有效方式。肯尼亚患者对互联网资源的吸收非常好。