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Factors affecting participant recruitment and retention in borderline personality disorder research: a feasibility study
Pilot and Feasibility Studies ( IF 1.5 ) Pub Date : 2021-09-20 , DOI: 10.1186/s40814-021-00915-y
Julia Woo 1 , Hamnah Shahid 2 , Alannah Hillmer 1, 3 , Alamna Abdullah 4 , Sarah Deshpande 4 , Balpreet Panesar 1, 3 , Nitika Sanger 1, 5 , Zena Samaan 1
Affiliation  

Previous studies have shown that stigma is a major barrier to participation in psychiatric research and that individuals who participate in psychiatric research may differ clinically and demographically from non-participants. However, few studies have explored research recruitment and retention challenges in the context of personality disorders. To provide an analysis of the factors affecting participant recruitment and retention in a study of borderline personality disorder among general psychiatric inpatients. Adult inpatients in a tertiary psychiatric hospital were approached about participating in a cross-sectional study of borderline personality disorder. Recruitment rates, retention rates, and reasons for declining participation or withdrawing from the study were collected. Demographic characteristics were compared between participants and non-participants and between patients who remained in the study and those who withdrew. A total of 71 participants were recruited into the study between January 2018 and March 2020. Recruitment and retention rates were 45% and 70%, respectively. Lack of interest was the most commonly cited reason for non-participation, followed by scheduling conflicts and concerns regarding mental/physical well-being. Age and sex were not predictors of study participation or retention. More research is needed to explore patients’ perspectives and attitudes towards borderline personality disorder diagnosis and research, determine effects of different recruitment strategies, and identify clinical predictors of recruitment and retention in personality disorder research.

中文翻译:

边缘型人格障碍研究中影响参与者招募和保留的因素:一项可行性研究

先前的研究表明,污名是参与精神病学研究的主要障碍,参与精神病学研究的个人可能在临床和人口统计学上与非参与者不同。然而,很少有研究探讨人格障碍背景下的研究招募和保留挑战。分析影响普通精神病住院患者边缘型人格障碍研究中参与者招募和保留的因素。接触了三级精神病医院的成年住院患者,希望他们参与一项边缘型人格障碍的横断面研究。收集了招募率、保留率以及拒绝参与或退出研究的原因。比较参与者和非参与者之间以及留在研究中的患者和退出研究的患者之间的人口统计学特征。2018 年 1 月至 2020 年 3 月期间,共有 71 名参与者被招募到研究中。招募率和保留率分别为 45% 和 70%。缺乏兴趣是不参与的最常见原因,其次是日程安排冲突和对心理/身体健康的担忧。年龄和性别不是研究参与或保留的预测因素。需要更多的研究来探索患者对边缘型人格障碍诊断和研究的观点和态度,确定不同招募策略的影响,并确定人格障碍研究中招募和保留的临床预测因素。
更新日期:2021-09-20
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