Study Objective

To evaluate knowledge, attitudes, and practices about sexual and reproductive health (SRH) for adolescent and young adult (AYA) women with epilepsy among general pediatricians, adolescent medicine specialists, and pediatric gynecologists.

Design

Survey comprising previously validated and novel items that underwent content validity testing and was distributed through specialty listservs. Categorical variables analyzed with χ² or Fisher exact tests, and continuous variables with Kruskal-Wallis tests.

Setting

Online.

Participants

Physicians and Advanced practice providers.

Interventions

Online survey.

Main Outcome Measure(s)

Questions testing SRH knowledge, assessing confidence in SRH counseling practices and frequency of intended SRH counseling, and identifying barriers and facilitators to SRH provision for AYA women with epilepsy.

Results

Of 329 participants, 57% were general pediatricians, 27% were adolescent medicine specialists, and 16% were pediatric gynecologists. On 15 items assessing knowledge, general pediatricians scored significantly lower than respondents in the other specialties (P < .01). Among 11 items about confidence in SRH skills, general pediatricians were significantly less confident than respondents in the other specialties (P < .01). General pediatricians reported that they would perform annual counseling less often on 7 SRH counseling topics compared with respondents in the other specialties (P < .01). In all, 54% of the respondents reported that barriers to SRH provision include limited time during visits and lack of epilepsy knowledge. Respondents identified facilitators including guidelines/algorithms for managing SRH (83%), provider education (61%), and electronic health record alerts (60%).

Conclusion

Responses suggest suboptimal knowledge, confidence, and care provision regarding SRH for AYA women with epilepsy, particularly among general pediatricians. Identified barriers and facilitators may serve as targets for interventions to improve SRH provision.

中文翻译：

---

对患有癫痫的青少年女性生殖保健的医疗保健提供者调查

学习目标

评估普通儿科医生、青少年医学专家和儿科妇科医生对患有癫痫的青少年和青年 (AYA) 女性的性和生殖健康 (SRH) 的知识、态度和实践。

设计

调查包括经过内容有效性测试并通过专业列表服务分发的先前验证和新颖的项目。分类变量用 χ2^或Fisher 精确检验分析，连续变量用 Kruskal-Wallis 检验分析。

环境

在线的。

参与者

医师和高级实践提供者。

干预措施

在线调查。

主要观察指标）

测试 SRH 知识的问题，评估对 SRH 咨询实践的信心和预期的 SRH 咨询频率，并确定为 AYA 癫痫女性提供 SRH 的障碍和促进因素。

结果

在 329 名参与者中，57% 是普通儿科医生，27% 是青少年医学专家，16% 是儿科妇科医生。在知识评估的 15 个项目中，普通儿科医生的得分明显低于其他专业的受访者（P < .01）。在关于 SRH 技能信心的 11 个项目中，普通儿科医生的信心明显低于其他专业的受访者（P < .01）。普通儿科医生报告说，与其他专业的受访者相比，他们会较少就 7 个 SRH 咨询主题进行年度咨询（P< .01)。总之，54% 的受访者表示，提供 SRH 的障碍包括就诊时间有限和缺乏癫痫知识。受访者确定了促进因素，包括管理 SRH (83%)、提供者教育 (61%) 和电子健康记录警报 (60%) 的指南/算法。

结论

回应表明，对于 AYA 癫痫女性，尤其是普通儿科医生，对 SRH 的知识、信心和护理提供欠佳。已确定的障碍和促进因素可作为改善性与生殖健康供应的干预目标。