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The COVID-19 pandemic: a new epoch and fresh challenges for cancer patients and caregivers-a descriptive cross-sectional study.
Supportive Care in Cancer ( IF 2.8 ) Pub Date : 2021-09-18 , DOI: 10.1007/s00520-021-06564-4
Seema Mishra 1 , Raghav Gupta 1 , Sushma Bhatnagar 1 , Rakesh Garg 1 , Sachidanand Jee Bharati 1 , Vinod Kumar 1 , Nishkarsh Gupta 1
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PURPOSE Cancer patients and their caregivers are overwhelmed with features of uncertainty, fear, shock, worry, anxiety, sadness, and grief. To add on to their misery, the COVID-19 pandemic has severely afflicted the cancer care delivery. The study was conducted to observe the challenges faced by cancer patients and their caregivers and to formulate strategies for oncological setups to overcome those challenges. METHODS After obtaining institutional ethical clearance, a descriptive cross-sectional study was conducted to observe the challenges faced by patients and their caregivers at the level of various domains (physical, logistic, psychological, socioeconomic, and spiritual) who visited the outpatient and inpatient department of cancer pain and palliative care unit. The results were expressed in absolute numbers. RESULTS Major challenges encountered were suffering from physical symptoms like pain, nausea, vomiting, dyspnea (90%), postponement of cancer treatment (80%), fear of contracting COVID infection due to hospital visit (93.5%), lack of accommodation (70%), and lack of spiritual clarity and hope (50%). CONCLUSIONS Major challenges faced by patients were in physical and psychological domains, and those by caregivers were in socioeconomic domains and handling physical symptoms of their patients. It is imperative to recognize and be cognizant of the challenges faced by cancer patients and their caregivers. Health care setups should formulate strategies to alleviate these challenges and provide holistic care to cancer patients. These strategies will hold in good stead for future pandemics also.

中文翻译:

COVID-19 大流行:癌症患者和护理人员面临的新时代和新挑战——一项描述性横断面研究。

目的 癌症患者和他们的照顾者被不确定、恐惧、震惊、担心、焦虑、悲伤和悲伤的特征所淹没。为了增加他们的痛苦,COVID-19 大流行严重影响了癌症护理的提供。该研究旨在观察癌症患者及其护理人员面临的挑战,并制定肿瘤学设置策略以克服这些挑战。方法 在获得机构伦理许可后,进行描述性横断面研究,以观察访问门诊和住院部的患者及其护理人员在各个领域(身体、后勤、心理、社会经济和精神)层面面临的挑战癌症疼痛和姑息治疗单元。结果以绝对数字表示。结果 遇到的主要挑战包括身体症状,如疼痛、恶心、呕吐、呼吸困难(90%)、癌症治疗推迟(80%)、因医院就诊而感染新冠病毒的恐惧(93.5%)、住宿不足(70 %),缺乏精神上的清晰和希望(50%)。结论 患者面临的主要挑战是生理和心理领域,而护理人员面临的主要挑战是社会经济领域和处理患者的身体症状。必须认识并认识到癌症患者及其护理人员所面临的挑战。医疗保健机构应制定策略来缓解这些挑战并为癌症患者提供整体护理。这些策略也将有助于未来的流行病。恶心、呕吐、呼吸困难 (90%)、推迟癌症治疗 (80%)、害怕因住院而感染新冠病毒 (93.5%)、缺乏住宿 (70%) 以及缺乏精神上的清晰和希望 (50 %)。结论 患者面临的主要挑战是生理和心理领域,而护理人员面临的主要挑战是社会经济领域和处理患者的身体症状。必须认识并认识到癌症患者及其护理人员所面临的挑战。医疗保健机构应制定策略来缓解这些挑战并为癌症患者提供整体护理。这些策略也将有助于未来的流行病。恶心、呕吐、呼吸困难 (90%)、推迟癌症治疗 (80%)、害怕因住院而感染新冠病毒 (93.5%)、缺乏住宿 (70%) 以及缺乏精神上的清晰和希望 (50 %)。结论 患者面临的主要挑战是生理和心理领域,而护理人员面临的主要挑战是社会经济领域和处理患者的身体症状。必须认识并认识到癌症患者及其护理人员所面临的挑战。医疗保健机构应制定策略来缓解这些挑战并为癌症患者提供整体护理。这些策略也将有助于未来的流行病。缺乏适应(70%),缺乏精神上的清晰和希望(50%)。结论 患者面临的主要挑战是生理和心理领域,而护理人员面临的主要挑战是社会经济领域和处理患者的身体症状。必须认识并认识到癌症患者及其护理人员所面临的挑战。医疗保健机构应制定策略来缓解这些挑战并为癌症患者提供整体护理。这些策略也将有助于未来的流行病。缺乏适应(70%),缺乏精神上的清晰和希望(50%)。结论 患者面临的主要挑战是生理和心理领域,而护理人员面临的主要挑战是社会经济领域和处理患者的身体症状。必须认识并认识到癌症患者及其护理人员所面临的挑战。医疗保健机构应制定策略来缓解这些挑战并为癌症患者提供整体护理。这些策略也将有助于未来的流行病。必须认识并认识到癌症患者及其护理人员所面临的挑战。医疗保健机构应制定策略来缓解这些挑战并为癌症患者提供整体护理。这些策略也将有助于未来的流行病。必须认识并认识到癌症患者及其护理人员所面临的挑战。医疗保健机构应制定策略来缓解这些挑战并为癌症患者提供整体护理。这些策略也将有助于未来的流行病。
更新日期:2021-09-18
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