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A qualitative investigation of the psychosocial services utilised by care-givers of patients with Alzheimer's disease and related dementias in southwestern Uganda
Ageing & Society ( IF 2.3 ) Pub Date : 2021-09-15 , DOI: 10.1017/s0144686x21001276
Catherine Abaasa 1 , Celestino Obua 2 , Edith K Wakida 3 , Godfrey Zari Rukundo 4
Affiliation  

Individuals with Alzheimer's disease and related dementias often require substantial support from other people. Much of the care-giving is from family members who eventually experience physical, emotional and financial stress, depression and fatigue. In Uganda, families are a cornerstone in providing care to individuals with dementia. However, little is known about the psychosocial supports available to the care-givers in their care-giving role. We assessed the psychosocial supports available to care-givers of individuals with Alzheimer's disease and related dementias in southwestern Uganda. We conducted 34 in-depth interviews at three referral hospitals at which care-givers identified by the treating clinicians were approached for informed consent. The interviews were conducted until thematic saturation was reached, and the interviews were translated and transcribed. Thematic content analysis was used to analyse the data. Care-giver supports were structured into two major themes: medical supports utilised and supports beyond the medical care system. Medical supports highlighted information provided by medical professionals. Supports beyond the medical care system included emotional and instrumental supports provided by religious leaders, the local communities and family members. Care-givers for individuals with dementia in southwestern Uganda receive educational support from medical practitioners, and unstructured emotional and instrumental supports from the family and community.



中文翻译:

对乌干达西南部阿尔茨海默病和相关痴呆症患者的护理人员所使用的心理社会服务的定性调查

患有阿尔茨海默病和相关痴呆症的人通常需要其他人的大力支持。大部分照顾来自家庭成员,他们最终会经历身体、情感和经济压力、抑郁和疲劳。在乌干达,家庭是为痴呆症患者提供护理的基石。然而,人们对护理人员在护理过程中可获得的社会心理支持知之甚少。我们评估了乌干达西南部阿尔茨海默病和相关痴呆症患者的护理人员可获得的心理社会支持。我们在 3 家转诊医院进行了 34 次深度访谈,与治疗临床医生确定的护理人员取得了知情同意。访谈进行到主题达到饱和为止,并对访谈进行翻译和转录。使用主题内容分析来分析数据。护理人员支持分为两大主题:利用的医疗支持和医疗保健系统之外的支持。医疗支持强调了医疗专业人员提供的信息。医疗保健系统之外的支持包括宗教领袖、当地社区和家庭成员提供的情感和工具支持。乌干达西南部痴呆症患者的护理人员获得医生的教育支持,以及家庭和社区的非结构化情感和工具支持。

更新日期:2021-09-15
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