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Patient Engagement: an Assessment of Canadian Radiotherapy Programs’ Current Practices, Perceived Barriers, and Facilitators
Journal of Cancer Education ( IF 1.6 ) Pub Date : 2021-09-14 , DOI: 10.1007/s13187-021-02049-4
Gabrielle Robin 1, 2 , Carol-Anne Davis 1, 2, 3 , Cody Harper 1, 2 , Amanda Caissie 1, 2, 3 , Erika Brown 2, 3 , Louise Bird 2, 3 , Lianne Wilson 2, 3 , Ross Halperin 2, 4 , Michael Brundage 2, 3, 5 , Jennifer Croke 2, 6 , Meredith Giuliani 2, 6
Affiliation  

Patient engagement and education have been mandated across Canadian radiation oncology programs (ROP). Guidance documents include the 2014 Canadian Association of Radiation Oncology (CARO) Radiation Therapy Patient Charter, the 2016 Canadian Partnership for Quality Radiotherapy (CPQR) Patient Engagement Guidelines (PEG) for Canadian Radiation Treatment Programs, and Accreditation Canada’s 2017 refresh of Cancer Care Standards. Since little is known regarding uptake of these guidance statements, Canadian ROP were surveyed to assess current patient engagement and education practices. An e-survey was sent to Canadian ROP (n = 44). The survey focused on awareness and uptake of the CARO Patient Charter, CPQR PEG, and patient education practices. Survey development was guided by these documents and expert consensus, including CARO’s Quality and Standards Patient Education/Engagement working group. Many (71%) responding ROP were familiar with the CARO Patient Charter, while 24% reported use. More than half (53%) of ROP were aware of the CPQR PEG, but approximately third (37%) had previously completed a self-audit. Most (88%) ROP view a pan-Canadian, evidence-based approach to educational materials beneficial and feasible (80%), with the majority (89%) willing to share their best practices across the radiotherapy community. Patient engagement and education are nationally mandated and supported by guidance documents. However, gaps have been identified across ROP for awareness and use of available tools, as well as uptake of their processes critical to quality of care. Understanding current practices will inform CPQR/CARO-supported pan-Canadian initiatives to optimize uptake, including development of CPQR Patient Education Guidance for Canadian Radiation Treatment Programs.



中文翻译:

患者参与:对加拿大放射治疗计划当前实践、感知障碍和促进者的评估

加拿大放射肿瘤学计划 (ROP) 已强制要求患者参与和教育。指导文件包括 2014 年加拿大放射肿瘤协会 (CARO) 放射治疗患者宪章、2016 年加拿大质量放射治疗伙伴关系 (CPQR) 加拿大放射治疗计划患者参与指南 (PEG) 以及加拿大 2017 年更新的癌症护理标准认证。由于对这些指导声明的采用知之甚少,因此对加拿大 ROP 进行了调查,以评估当前的患者参与和教育实践。电子调查已发送至加拿大 ROP(n = 44)。该调查的重点是对 CARO 患者宪章、CPQR PEG 和患者教育实践的认识和接受。调查发展以这些文件和专家共识为指导,包括 CARO 的质量和标准患者教育/参与工作组。许多 (71%) 响应 ROP 的人熟悉 CARO 患者章程,而 24% 的人报告使用过。超过一半 (53%) 的 ROP 知道 CPQR PEG,但大约三分之一 (37%) 之前已完成自我审核。大多数 (88%) ROP 认为泛加拿大、循证的教育材料方法有益且可行 (80%),大多数 (89%) 愿意在放射治疗界分享他们的最佳实践。患者参与和教育是国家规定的,并得到指导文件的支持。然而,在对可用工具的认识和使用以及对对护理质量至关重要的流程的采用方面,整个 ROP 都存在差距。

更新日期:2021-09-15
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