Background:National cardiac registries are increasingly used for informing health policy, improving the quality and cost-effectiveness of patient care, clinical research, and monitoring the safety of novel treatments. However, the quality of registries is variable. We aimed to assess the characteristics and quality of national cardiac registries across all subspecialties of cardiac care.Methods:Publications relating to national cardiac registries across six cardiac subspecialty domains were identified by searching MEDLINE and the Google advanced search function with 26 438 citations and 4812 full-text articles reviewed.Results:A total of 155 registries, representing 49 countries, were included in the study. Of these, 45 related to coronary disease or percutaneous coronary intervention, 28 related to devices, arrhythmia, and electrophysiology, 24 related to heart failure, transplant, and mechanical support, 21 related to structural heart disease, 21 related to congenital heart disease, and 16 related to cardiac surgery. Enrollment was procedure-based in 60% and disease-based in 40%. A total of 73.10 million patients were estimated to have been enrolled in cardiac registries. Quality scoring was performed using a validated registry grading system, with registries performing best in the use of explicit variable definitions and worst in assessment of data reliability. Higher quality scores were associated with government funding, mandated enrollment, linkage to other registries, and outcome risk adjustment. Quality scores and number of registries within a country were positively correlated with each other and with measures of national economic output, health expenditure, and urbanization.Conclusions:There has been remarkable growth in the uptake of national cardiac registries across the last few decades. However, the quality of processes used to ensure data completeness and accuracy remain variable and few countries have integrated registries covering multiple subspecialty domains. Clinicians, funders, and health policymakers should be encouraged to focus on the range, quality, and integration of these registries.Registration:URL: https://www.crd.york.ac.uk/prospero; Unique identifier: CRD42020204224.

中文翻译：

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国家心脏登记处的特征和质量：系统评价

背景：国家心脏登记越来越多地用于通知卫生政策、提高患者护理、临床研究的质量和成本效益，以及监测新疗法的安全性。然而，登记的质量是可变的。我们旨在评估心脏护理所有亚专业的国家心脏登记的特征和质量。方法：通过搜索 MEDLINE 和谷歌高级搜索功能，确定与六个心脏亚专业领域的国家心脏登记相关的出版物，有 26 438 次引用和 4812 次完整- 文本文章审查。结果：共有 155 个注册机构，代表 49 个国家/地区，被纳入研究。其中，45 例与冠状动脉疾病或经皮冠状动脉介入治疗有关，28 例与装置、心律失常和电生理学有关，24 例与心力衰竭、移植和机械支持有关，21 例与结构性心脏病有关，21 例与先天性心脏病有关，16 例与心脏手术有关。60% 的入组是基于程序的，40% 是基于疾病的。据估计，共有 7310 万患者参加了心脏登记。质量评分是使用经过验证的注册表分级系统进行的，注册表在使用明确的变量定义方面表现最好，在数据可靠性评估方面表现最差。较高的质量分数与政府资助、强制登记、与其他登记处的联系以及结果风险调整有关。一个国家内的质量得分和登记数量相互之间以及与国民经济产出、卫生支出和城市化的衡量标准呈正相关。结论：在过去的几十年里，国家心脏登记的使用有了显着的增长。然而，用于确保数据完整性和准确性的流程的质量仍然存在差异，很少有国家拥有涵盖多个亚专业领域的综合注册机构。应鼓励临床医生、资助者和卫生政策制定者关注这些注册的范围、质量和整合。注册：URL：https://www.crd.york.ac.uk/prospero；唯一标识符：CRD42020204224。应鼓励卫生政策制定者关注这些注册的范围、质量和整合。注册：URL：https://www.crd.york.ac.uk/prospero；唯一标识符：CRD42020204224。应鼓励卫生政策制定者关注这些注册的范围、质量和整合。注册：URL：https://www.crd.york.ac.uk/prospero；唯一标识符：CRD42020204224。