GenCOUNSEL is the largest genetic counseling research grant awarded to date and brings together experts in genetic counseling, genomics, law and policy, health services implementation, and health economics research. It is the first project of its kind to examine the genetic counseling issues associated with the clinical implementation of genome-wide sequencing (exome and genome sequencing). GenCOUNSEL is a Canadian-based, multi-method research study that takes place over a variety of sites, including non-clinical, clinical, and laboratory research sites and includes the training of undergraduate and graduate students. The COVID-19 pandemic will likely have a lasting impact on genetic counseling service delivery, research, and training. Almost every aspect of the GenCOUNSEL research project has been impacted by the COVID-19 pandemic. Here we describe how our research recruitment strategies, methods, resource allocation, and training capacity have been affected. We discuss ways that we have adapted to the pandemic including revision of our research methods and work to understand the barriers in order to optimize opportunities. We finish with take-home messages to fellow researchers highlighting the importance of resiliency in genetic counseling research.

中文翻译：

---

遗传咨询研究和 COVID-19：弹性的教训

GenCOUNSEL 是迄今为止获得的最大的遗传咨询研究资助，汇集了遗传咨询、基因组学、法律和政策、卫生服务实施和卫生经济学研究方面的专家。这是同类项目中第一个研究与全基因组测序（外显子组和基因组测序）临床实施相关的遗传咨询问题。GenCOUNSEL 是一项基于加拿大的多方法研究，在多个地点进行，包括非临床、临床和实验室研究地点，并包括对本科生和研究生的培训。COVID-19 大流行可能会对遗传咨询服务的提供、研究和培训产生持久影响。GenCOUNSEL 研究项目的几乎每个方面都受到 COVID-19 大流行的影响。在这里，我们描述了我们的研究招募策略、方法、资源分配和培训能力如何受到影响。我们讨论了我们适应大流行的方法，包括修改我们的研究方法，并努力了解障碍以优化机会。最后，我们向其他研究人员提供了带回家的信息，强调了弹性在遗传咨询研究中的重要性。