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Brief Report: The Experiences of Families of Children with an Autism Spectrum Disorder When Seeking Patient-and Family-Centered Care
Journal of Autism and Developmental Disorders ( IF 3.2 ) Pub Date : 2021-09-09 , DOI: 10.1007/s10803-021-05272-6
Jennifer L Kouo 1 , Theodore S Kouo 2 , Jillian Gallogly 1
Affiliation  

Patient-and family-centered care (PFCC) is a partnership among healthcare professionals, patients, and families that is grounded in mutual respect and is an approach that impacts delivery of care, decision-making, and information sharing. PFCC should be implemented for all, including individuals with Autism Spectrum Disorders (ASD), who experience adverse medical encounters despite increased prevalence and healthcare utilization. Insights into the experiences of families during medical experiences can inform clinical practice by increasing healthcare professionals’ understanding of the population. Using a mixed-methods approach, the perspectives of 40 families were analyzed. The themes include barriers and opportunities to improve upon the delivery of PFCC, which help to advance healthcare interactions and inform solution-based initiatives to facilitate medical visits that may benefit all patients.



中文翻译:

简要报告:自闭症谱系障碍儿童家庭在寻求以患者和家庭为中心的护理时的经历

以患者和家庭为中心的护理 (PFCC) 是医疗保健专业人员、患者和家庭之间的合作伙伴关系,以相互尊重为基础,是一种影响护理交付、决策制定和信息共享的方法。应该为所有人实施 PFCC,包括患有自闭症谱系障碍 (ASD) 的个人,尽管患病率和医疗保健利用率有所增加,但他们却经历了不利的医疗事故。深入了解家庭在医疗经历中的经历可以通过增加医疗保健专业人员对人群的了解来为临床实践提供信息。使用混合方法,分析了 40 个家庭的观点。主题包括改进 PFCC 交付的障碍和机会,

更新日期:2021-09-09
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