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Patient and public involvement in the design and conduct of a large, pragmatic observational trial to investigate recurrent, high-risk non–muscle-invasive bladder cancer
Cancer ( IF 6.1 ) Pub Date : 2021-09-08 , DOI: 10.1002/cncr.33897
Angela B Smith 1 , Jenney R Lee 2 , Sarah O Lawrence 3 , On Ho 4 , Danielle C Lavallee 5, 6 , Stephanie Chisolm 7 , Doug B MacLean 8 , Renata K Louwers 8 , Erika M Wolff 2 , Larry G Kessler 6 , Kristin M Follmer 2 , John L Gore 2
Affiliation  

Patient-centered approaches to research design are particularly important for diseases with complex treatment decision-making, such as recurrent, high-grade non–muscle-invasive bladder cancer (NMIBC). The objective of this article is to describe patient and public involvement (PPI) in designing a large, pragmatic observational trial and to articulate barriers, challenges, and lessons learned for future design.

中文翻译:


患者和公众参与设计和实施一项大型、务实的观察性试验,以调查复发性、高风险非肌层浸润性膀胱癌



以患者为中心的研究设计方法对于治疗决策复杂的疾病尤其重要,例如复发性高级别非肌层浸润性膀胱癌 (NMIBC)。本文的目的是描述患者和公众参与设计大型、务实的观察性试验,并阐明未来设计的障碍、挑战和经验教训。
更新日期:2021-09-08
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