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“Parenting Beyond the Veil”: The Continued Parenting Relationship After a Child's Death Due to Cancer
Journal of Pediatric Hematology/Oncology Nursing ( IF 1.7 ) Pub Date : 2021-09-08 , DOI: 10.1177/10434542211041928
Christine Denhup 1
Affiliation  

Background: Childhood cancer is the leading cause of illness-related death, leaving thousands of parents to experience bereavement. This article presents select findings about the nature of the continued parenting relationship, which is an essential theme of the parental bereavement experience. Method: Heideggerian phenomenology provided the philosophical underpinnings of this study, which aimed to describe the lived experience of bereaved parents who experienced the death of a child due to cancer. Van Manen’s (1997) method guided data collection and analysis. Six parents participated in interviews to share what it has been like for them since their child's death. The researcher wrote analytic memos, documented detailed field notes, and used a member checking process to ensure trustworthiness of findings. Results: A structure of the lived experience of parental bereavement emerged, which included the essential theme of the continued parenting relationship. The parenting relationship continues throughout a parent's lifetime in spite of the child's physical absence, albeit in a different manner. This different nature of parenting is known as parenting beyond the veil. Bereaved parents continue to parent beyond the veil by engaging in meaningful activities, seeking activities that strengthen a deep connection with the child, and being open to comforting signs that enhance their continued relationship. Discussion: Parents believe sharing their experience can help nurses and other professionals understand the importance of their continued parenting relationship and their need to parent beyond the veil so that they can provide high quality care to bereaved parents in the future.



中文翻译:

“面纱之外的育儿”:儿童因癌症死亡后持续的育儿关系

背景:儿童癌症是疾病相关死亡的主要原因,让成千上万的父母经历丧亲之痛。本文介绍了关于持续养育关系的性质的精选发现,这是父母丧亲经历的一个基本主题。方法:海德格尔现象学为这项研究提供了哲学基础,旨在描述因癌症导致孩子死亡的失去亲人的父母的生活经历。Van Manen (1997) 的方法指导数据收集和分析。六位家长参加了采访,分享了自孩子去世后他们的感受。研究人员撰写了分析备忘录,记录了详细的现场笔记,并使用成员检查流程来确保调查结果的可信度。结果:父母丧亲的生活体验结构出现了,其中包括继续养育关系的基本主题。尽管孩子身体缺席,但父母的养育关系会贯穿父母的一生,尽管方式不同。这种不同性质的养育方式被称为面纱之外的养育方式。失去亲人的父母通过参与有意义的活动,寻求加强与孩子的深层联系的活动,以及对增强他们持续关系的安慰迹象持开放态度,继续在面纱之外为人父母。讨论:父母相信分享他们的经验可以帮助护士和其他专业人士了解他们继续养育关系的重要性以及他们需要超越面纱为人父母,以便他们将来可以为失去亲人的父母提供高质量的护理。

更新日期:2021-09-08
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