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Family involvement with care homes following placement of a relative living with dementia: a review
Ageing & Society ( IF 3.718 ) Pub Date : 2021-09-02 , DOI: 10.1017/s0144686x21000957
Janine K. Hayward 1 , Charlotte Gould 2 , Emma Palluotto 3 , Emily C. Kitson 4 , Aimee Spector 5
Affiliation  

This review updated a previous review [Gaugler JE (2005) Family involvement in residential long-term care: a synthesis and critical review. Aging and Mental Health 9, 105–118] and focused on dementia. Fourteen years of development in family involvement with care homes following placement of a relative was explored. The review aimed to investigate two questions: (1) What types of involvement do families have with care homes following placement of people living with dementia? (2) Which factors influence family involvement with care homes? PsycINFO, MEDLINE and CINAHL Plus were searched for publications between January 2005 and December 2018. Thirty-three papers representing 30 studies were included. Papers were appraised using a quality rating tool designed for use with mixed study designs. Studies were of a reasonable quality though some weaknesses included single-site samples, high attrition rates and poor reporting. Twenty-eight papers highlighted types of involvement including collaboration, family–staff relationship development, decision making and visiting. Twenty-five papers pertained to factors influencing involvement, which included outcome of care quality evaluation, wish for recognition and sense of integration into the care team. Type of family involvement has changed over time with increased emphasis on families’ desire for partnership, to be active rather than passive advocates, and to focus on care monitoring and evaluation. Seven themes of family involvement activities are featured and a non-linear process is proposed. When compared to patient and family-centred care principles, an analysis of family involvement types found good fit overall and potential for framework improvements. Over 30 diverse factors influence inter-family variation in the level and nature of family involvement. Consideration of these factors and resolution of the gaps in evidence, including intergenerational and cultural concerns, can improve care home facilitation of family participation. This dementia-specific review is a comprehensive timely complement to Gaugler's seminal work about older adults in care.



中文翻译:

安置患有痴呆症的亲戚后,家庭对护理院的参与:审查

这篇综述更新了之前的综述 [Gaugler JE (2005) 家庭参与住宅长期护理:综合和批判性综述。老龄化与心理健康 9,105-118]并重点关注痴呆症。对安置亲属后家庭参与护理院的十四年发展进行了探讨。该审查旨在调查两个问题:(1)在安置痴呆症患者后,家庭对护理院有哪些类型的参与?(2) 哪些因素影响家庭参与护理院?检索了 PsycINFO、MEDLINE 和 CINAHL Plus 2005 年 1 月至 2018 年 12 月期间的出版物。纳入了代表 30 项研究的 33 篇论文。使用专为混合研究设计使用的质量评级工具对论文进行评估。尽管存在一些缺陷,包括单点样本、高流失率和报告质量差,但研究的质量还算不错。二十八篇论文强调了参与的类型,包括合作、家庭与员工关系发展、决策制定和探访。有 25 篇论文涉及影响参与的因素,其中包括护理质量评估的结果、获得认可的愿望以及融入护理团队的感觉。随着时间的推移,家庭参与的类型发生了变化,越来越强调家庭对伙伴关系的渴望,成为积极而不是被动的倡导者,并注重护理监测和评估。提出了家庭参与活动的七个主题,并提出了非线性过程。与以患者和家庭为中心的护理原则相比,对家庭参与类型的分析发现总体上非常适合并且有框架改进的潜力。超过 30 个不同的因素影响家庭参与程度和性质的家庭间差异。考虑这些因素并解决证据差距,包括代际和文化问题,可以改善护理院对家庭参与的便利。这篇针对痴呆症的综述是对高格勒关于老年人护理的开创性工作的全面及时补充。

更新日期:2021-09-02
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