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Supporting family carers of people with dementia: A discrete choice experiment of public preferences
Social Science & Medicine ( IF 4.9 ) Pub Date : 2021-09-02 , DOI: 10.1016/j.socscimed.2021.114359
Áine Teahan 1 , Sharon Walsh 2 , Edel Doherty 2 , Eamon O'Shea 1
Affiliation  

Community-based care for people with dementia is mainly provided by family carers, many of whom experience decreased mental, physical and financial well-being due to their caring role. Many countries are now implementing ageing-in-place policies that have increased pressure on family carers as care-work is redistributed from residential to community-based settings. Family caring responsibilities for people with dementia are made even more complicated by the economic, social and cultural expectations that underpin existing provision. Support for family carers is, therefore, an important policy topic across many countries. The focus of this paper is on the propensity of citizens to support enhanced care for family carers in Ireland, as demonstrated by their willingness-to-pay additional taxation to fund different combinations of carer support measures, developed through careful and sustained dialogue with multiple stakeholders, especially family carers themselves. We carried out a discrete choice experiment (DCE) with 509 members of the general public in Ireland between January and February 2021. Using mixed logit models, our findings show that citizens value four key attributes: regular caring breaks for family carers (day-care and long-break respite); financial compensation (carer's allowance); and emotional support (carer peer support groups). We also estimated the welfare impact of moving from current provision to enhanced support packages for family carers of people with dementia. The welfare gains accumulate to €1035.80 for the most complete levels of provision across the four support attributes. Overall, respondents in this paper showed empathy and understanding towards family carers of people with dementia through their willingness to contribute to funding additional services and supports.



中文翻译:

支持痴呆症患者的家庭照顾者:一项关于公众偏好的离散选择实验

痴呆症患者的社区护理主要由家庭护理人员提供,其中许多人由于他们的护理角色而经历了精神、身体和财务状况的下降。许多国家现在正在实施就地养老政策,随着照料工作从住宅环境重新分配到社区环境,这些政策增加了家庭照料者的压力。由于支持现有规定的经济、社会和文化期望,痴呆症患者的家庭护理责任变得更加复杂。因此,支持家庭照顾者是许多国家的一个重要政策主题。本文的重点是爱尔兰公民支持加强对家庭护理人员的护理的倾向,正如他们愿意支付额外税款以资助不同的照顾者支持措施组合所证明的那样,这些措施是通过与多个利益相关者,尤其是家庭照顾者本身进行认真和持续的对话而制定的。我们在 2021 年 1 月至 2 月期间对爱尔兰的 509 名公众进行了离散选择实验 (DCE)。使用混合 logit 模型,我们的研究结果表明,公民重视四个关键属性:定期照顾家庭护理人员(日托和长时间的休息);经济补偿(照顾者津贴);和情感支持(照顾者同伴支持小组)。我们还估计了从目前提供的福利转向为痴呆症患者的家庭照顾者提供增强的支持计划所带来的福利影响。福利收益累计达到 1035 欧元。80 表示四个支持属性中最完整的供应级别。总体而言,本文中的受访者对痴呆症患者的家庭照顾者表示同情和理解,他们愿意为额外的服务和支持提供资金。

更新日期:2021-09-13
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