ABSTRACT

The diagnosis of a pediatric neuromuscular disease has a psychological impact on parents. The study aimed to describe mental health and psychological adaptation in parents of children with neuromuscular diseases. The evaluation of parents (n = 35) through the Psychological Adaptation Scale and Adult Self-Report Questionnaire showed that (a) 82.4% of the participants had an adequate level of psychological adaptation; (b) parents presented high levels of mental health problems, (c) significant correlations were found between the mental health problems and psychological adaptation. This study highlights the need for psychological interventions which aim to promote psychological adaptation to NMD diagnoses and protect parental mental health.

摘要

小儿神经肌肉疾病的诊断会对父母产生心理影响。该研究旨在描述患有神经肌肉疾病的儿童的父母的心理健康和心理适应。通过心理适应量表和成人自我报告问卷对父母（n = 35）的评估表明：（a）82.4% 的参与者有足够的心理适应水平；(b) 父母存在高度的心理健康问题，(c) 发现心理健康问题与心理适应之间存在显着相关性。这项研究强调了心理干预的必要性，旨在促进对 NMD 诊断的心理适应并保护父母的心理健康。