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"I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children.
Journal of Autism and Developmental Disorders ( IF 3.2 ) Pub Date : 2021-08-25 , DOI: 10.1007/s10803-021-05240-0
Olivia J Lindly 1, 2, 3 , Jacqueline Cabral 1, 4 , Ruqayah Mohammed 1, 5 , Ivonne Garber 3 , Kamila B Mistry 6 , Karen A Kuhlthau 1, 2
Affiliation  

Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use.

中文翻译:

“我不做太多自己的研究”:一项混合方法研究,探索父母健康素养在幼儿自闭症服务中的作用。

对于父母的健康素养如何有助于自闭症儿童的健康相关结果知之甚少。这项混合方法研究包括 82 名 2-5 岁自闭症儿童的美国父母,旨在描述 (1) 健康素养维度,(2) 健康素养如何影响服务使用,以及 (3) 健康素养改进策略。结果显示:自闭症信息从多个来源获取;了解自闭症信息涉及“进行自己的研究”;自闭症信息授权决策;健康素养促进行为服务的使用;健康素养影响药物使用;家庭和系统特征也影响服务使用;仍然需要自闭症教育;整个诊断过程都需要服务信息;更大的科学信息可及性将增加吸收。调查结果表明父母的健康素养如何影响服务的使用。
更新日期:2021-08-25
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