Mental health lived experience narratives are first-person accounts of people with experience of mental health problems. They have been published in journals, books and online, and used in healthcare interventions and anti-stigma campaigns. There are concerns about their potential misuse. A four-language systematic review was conducted of published literature characterizing uses and misuses of mental health lived experience narratives within healthcare and community settings. 6531 documents in four languages (English, Danish, Swedish, Norwegian) were screened and 78 documents from 11 countries were included. Twenty-seven uses were identified in five categories: political, societal, community, service level and individual. Eleven misuses were found, categorized as relating to the narrative (narratives may be co-opted, narratives may be used against the author, narratives may be used for different purpose than authorial intent, narratives may be reinterpreted by others, narratives may become patient porn, narratives may lack diversity), relating to the narrator (narrator may be subject to unethical editing practises, narrator may be subject to coercion, narrator may be harmed) and relating to the audience (audience may be triggered, audience may misunderstand). Four open questions were identified: does including a researcher’s personal mental health narrative reduce the credibility of their research?: should the confidentiality of narrators be protected?; who should profit from narratives?; how reliable are narratives as evidence?)

中文翻译：

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在医疗保健和社区环境中记录的心理健康生活经验叙述的使用和误用：系统评价

心理健康生活经历叙述是对有心理健康问题经历的人的第一人称叙述。它们已在期刊、书籍和网络上发表，并用于医疗干预和反污名运动。人们担心它们可能被滥用。对已发表的文献进行了四语言系统评价，这些文献描述了医疗保健和社区环境中心理健康生活经历叙述的使用和误用。筛选了四种语言（英语、丹麦语、瑞典语、挪威语）的 6531 份文件，包括来自 11 个国家的 78 份文件。确定了 27 种用途，分为五类：政治、社会、社区、服务水平和个人。发现了 11 个误用，归类为与叙述有关（叙述可能被增选，叙述可能被用来对付作者，叙述可能用于与作者意图不同的目的，叙述可能被他人重新解释，叙述可能变成病人色情片，叙述可能缺乏多样性），与叙述者有关（叙述者可能受到不道德的编辑行为，叙述者可能会受到胁迫，叙述者可能会受到伤害）和与听众有关（听众可能会被触发，听众可能会误解）。确定了四个开放性问题：包括研究人员的个人心理健康叙述是否会降低他们研究的可信度？：叙述者的机密性是否应该受到保护？谁应该从叙事中获益？叙述作为证据的可靠性如何？）叙述可能变成病人色情片，叙述可能缺乏多样性），与叙述者有关（叙述者可能会受到不道德的编辑行为，叙述者可能会受到胁迫，叙述者可能会受到伤害）和与听众有关（听众可能会被触发，听众可能会误解）。确定了四个开放性问题：包括研究人员的个人心理健康叙述是否会降低他们研究的可信度？：叙述者的机密性是否应该受到保护？谁应该从叙事中获益？叙述作为证据的可靠性如何？）叙述可能变成病人色情片，叙述可能缺乏多样性），与叙述者有关（叙述者可能会受到不道德的编辑行为，叙述者可能会受到胁迫，叙述者可能会受到伤害）和与听众有关（听众可能会被触发，听众可能会误解）。确定了四个开放性问题：包括研究人员的个人心理健康叙述是否会降低他们研究的可信度？：叙述者的机密性是否应该受到保护？谁应该从叙事中获益？叙述作为证据的可靠性如何？）确定了四个开放性问题：包括研究人员的个人心理健康叙述是否会降低他们研究的可信度？：叙述者的机密性是否应该受到保护？谁应该从叙事中获益？叙述作为证据的可靠性如何？）确定了四个开放性问题：包括研究人员的个人心理健康叙述是否会降低他们研究的可信度？：叙述者的机密性是否应该受到保护？谁应该从叙事中获益？叙述作为证据的可靠性如何？）