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Value of Personalized Dementia-Specific Quality of Life Scales: An Explorative Study in 3 European Countries
American Journal of Alzheimer's Disease and other Dementias ( IF 2.7 ) Pub Date : 2021-08-23 , DOI: 10.1177/15333175211033721
Iris Hendriks 1 , Raquel Demetrio 2 , Franka J M Meiland 1 , Rabih Chattat 3 , Dorota Szcześniak 4 , Joanna Rymaszewska 4 , Teake P Ettema 1 , Shirley B Evans 5 , Dawn Brooker 5 , Simon C Evans 5 , Teresa Atkinson 5 , Elisabetta Farina 6 , Francesca L Saibene 6 , Debby L Gerritsen 7 , Rose-Marie Dröes 1
Affiliation  

Measuring Quality of Life (QOL) can be difficult due to its individual character. To explore the value of personalized QOL measurement for people with dementia, personalized versions of two dementia-specific QOL scales (Dementia quality of Life (DQoL) and Quaility of Life in Alzheimer's Disease (QoL-AD)) were constructed. This study investigated whether the personalized measures are more valid to detect variations in QOL than their standard versions for people with mild to moderate dementia, with sufficient internal consistency. Moreover, the relationship between the personalized QOL measures and severity of dementia was investigated. Finally, the study explored the differences between countries regarding the personalized overall QOL and differences in the importance of QOL domains. This explorative one-group design study used baseline data from the MEETINGDEM study into the implementation of the Meeting Centres Support Programme in Italy, Poland and the UK. The personalized versions of the DQoL and QoL-AD were reliable, but not more valid than their standard versions. No relationship between severity of dementia and personalized QOL was found. While no differences were found between countries for the overall QOL score, some QOL domains were valued differently: people with dementia from the UK rated self-esteem, mood, physical health, energy level and the ability to do chores around the house significantly less important than people from Italy and Poland. The personalized versions of the DQoL and QoL-AD may offer dementia care practice important insights into what domains contribute most to an individual’s QOL.



中文翻译:


个性化痴呆症特定生活质量量表的价值:在三个欧洲国家的探索性研究



由于其个体特征,衡量生活质量 (QOL) 可能很困难。为了探索个性化 QOL 测量对痴呆症患者的价值,构建了两种痴呆症特异性 QOL 量表(痴呆症生活质量 (DQoL) 和阿尔茨海默病生活质量 (QoL-AD))的个性化版本。这项研究调查了对于轻度至中度痴呆症患者来说,个性化测量是否比标准测量更有效地检测生活质量的变化,并具有足够的内部一致性。此外,还调查了个性化生活质量测量与痴呆严重程度之间的关系。最后,该研究探讨了国家之间在个性化整体生活质量方面的差异以及生活质量领域重要性的差异。这项探索性的单组设计研究使用了 MEETINGDEM 研究的基线数据来实施意大利、波兰和英国的会议中心支持计划。 DQoL 和 QoL-AD 的个性化版本是可靠的,但并不比标准版本更有效。没有发现痴呆症严重程度与个性化生活质量之间存在任何关系。虽然不同国家之间的总体生活质量得分没有差异,但一些生活质量领域的评价有所不同:英国痴呆症患者对自尊、情绪、身体健康、精力水平和做家务的能力的评价明显不那么重要比来自意大利和波兰的人。 DQoL 和 QoL-AD 的个性化版本可以为痴呆症护理实践提供重要的见解,了解哪些领域对个人的 QOL 贡献最大。

更新日期:2021-08-23
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