The current study aimed to identify the educational and support needs of family carers of people with dementia in the early stages of dementia by employing a qualitative approach with retrospective semi-structured interviews with family carers of people in the later stages of Alzheimer’s disease (AD). Semi-structured individual interviews were conducted via telephone or Microsoft Teams video call. Purposive sampling was used to recruit twelve family carers of people with moderate or severe AD. An interview guide was used to explore the retrospective views of the carer’s educational and support needs in the early stages of AD. The interviews were audio-recorded transcribed and analysed using thematic analysis. Three overarching themes were identified. Theme 1 highlighted that family carers experienced frequent and overwhelming need to fulfil a family obligation and feelings of guilt to seek help, which acted as barriers to seeking support, in the early stages. In theme 2, family carers rarely received support in the early stages and available resources were limited to self-help materials. Finally, in Theme 3, family carers wanted to receive interpersonal tailored support to seek practical advice and to learn psychological skills to build resilience in the early stages to overcome emotional challenges. The development of interventions that are specifically designed for family carers in the early stages is critical. The key components to be considered for future interventions are discussed.

中文翻译：

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照顾处于阿尔茨海默病早期阶段的人的家庭护理人员的教育和支持需求是什么？定性回顾方法

目前的研究旨在通过采用定性方法对阿尔茨海默病 (AD) 晚期患者的家庭照顾者进行回顾性半结构化访谈，以确定痴呆症早期患者的家庭照顾者的教育和支持需求。 . 半结构化的个人访谈是通过电话或 Microsoft Teams 视频通话进行的。有目的的抽样用于招募 12 名中度或重度 AD 患者的家庭照顾者。使用访谈指南来探讨在 AD 早期阶段照顾者的教育和支持需求的回顾性观点。访谈被录音转录并使用主题分析进行分析。确定了三个总体主题。主题 1 强调，家庭照顾者在早期阶段经历了频繁和压倒性的需要履行家庭义务和寻求帮助的内疚感，这成为寻求支持的障碍。在主题 2 中，家庭照顾者在早期阶段很少得到支持，可用资源仅限于自助材料。最后，在主题 3 中，家庭照顾者希望获得人际量身定制的支持，以寻求实用的建议并学习心理技能，以便在早期阶段建立适应力以克服情绪挑战。制定专门针对早期家庭照顾者的干预措施至关重要。讨论了未来干预措施要考虑的关键组成部分。在早期阶段。在主题 2 中，家庭照顾者在早期阶段很少得到支持，可用资源仅限于自助材料。最后，在主题 3 中，家庭照顾者希望获得人际量身定制的支持，以寻求实用的建议并学习心理技能，以便在早期阶段建立适应力以克服情绪挑战。制定专门针对早期家庭照顾者的干预措施至关重要。讨论了未来干预措施要考虑的关键组成部分。在早期阶段。在主题 2 中，家庭照顾者在早期阶段很少得到支持，可用资源仅限于自助材料。最后，在主题 3 中，家庭照顾者希望获得人际量身定制的支持，以寻求实用的建议并学习心理技能，以便在早期阶段建立适应力以克服情绪挑战。制定专门针对早期家庭照顾者的干预措施至关重要。讨论了未来干预措施要考虑的关键组成部分。家庭照顾者希望获得量身定制的人际支持，以寻求实用建议并学习心理技能，以便在早期阶段建立适应力以克服情绪挑战。制定专门针对早期家庭照顾者的干预措施至关重要。讨论了未来干预措施要考虑的关键组成部分。家庭照顾者希望获得量身定制的人际支持，以寻求实用建议并学习心理技能，以便在早期阶段建立适应力以克服情绪挑战。制定专门针对早期家庭照顾者的干预措施至关重要。讨论了未来干预措施要考虑的关键组成部分。