Abstract

Introduction

Survival of childhood cancer has increased over the past decades. This has led to the development of strategies aiming to enhance follow-up care and research, for which priorities may vary globally. We explored perspectives of an international healthcare workers panel.

Methods

Attendants of a meet-the-expert session on childhood cancer survivorship at the 2018 SIOP conference completed a survey about their view on important follow-up care and research aspects for survivors below and over 18 years. We analysed overarching categories and subtopics, and compared Asian versus European and North American healthcare workers.

Results

A total of 58 participants from different medical specialties (67.2% paediatric oncologists) and continents (48.3% Asia, 39.7% Europe/North America) responded. Follow-up care priorities for survivors below and over 18 years included physical care (39.3% ≤18 years, 35.9% >18 years) and healthcare structure (29.4%, 26.0%). Physical care was also the most important research aspect for both age groups (52.5%, 50.7%). Psychological support was the most frequently reported subtopic. Asian clinicians (n = 22) primarily prioritized physical care aspects of follow-up care, whereas European/North American (n = 19) clinicians underscored the importance of healthcare structure.

Conclusion

Physical care is the most important aspect of survivorship care and research according to clinicians from several continents. Asian and European/North American respondents shared most priorities, however, healthcare structure was a more important category for European/North American clinicians. The most common subtopic was psychological support, underlining also the need to involve psychologists in follow-up.

中文翻译：

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儿童癌症幸存者后续护理和研究的观点：2018 年京都国际 SIOP 专家会面调查问卷的结果

摘要

介绍

在过去的几十年中，儿童癌症的存活率有所增加。这导致制定旨在加强后续护理和研究的战略，其优先事项可能在全球范围内有所不同。我们探讨了国际医疗工作者小组的观点。

方法

参加 2018 年 SIOP 会议上儿童癌症幸存者专家会议的与会者完成了一项关于他们对 18 岁以下和 18 岁以上幸存者的重要后续护理和研究方面的看法的调查。我们分析了总体类别和子主题，并比较了亚洲与欧洲和北美的医护人员。

结果

共有来自不同医学专业（67.2% 儿科肿瘤学家）和各大洲（48.3% 亚洲，39.7% 欧洲/北美）的 58 名参与者做出了回应。18 岁以下和 18 岁以上幸存者的后续护理优先事项包括身体护理（39.3% ≤ 18 岁，35.9% > 18 岁）和医疗保健结构（29.4%，26.0%）。身体护理也是两个年龄组（52.5%、50.7%）最重要的研究方面。心理支持是最常报告的子主题。亚洲临床医生 (n = 22) 主要优先考虑后续护理的身体护理方面，而欧洲/北美 (n = 19) 临床医生则强调医疗保健结构的重要性。

结论

根据来自几大洲的临床医生的说法，身体护理是幸存者护理和研究中最重要的方面。亚洲和欧洲/北美受访者最优先考虑，但是，医疗保健结构是欧洲/北美临床医生更重要的类别。最常见的子主题是心理支持，这也强调了让心理学家参与后续行动的必要性。