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Experiences of ethnic minority patients who are living with a primary chronic bowel condition: a systematic scoping review with narrative synthesis
BMC Gastroenterology ( IF 2.5 ) Pub Date : 2021-08-18 , DOI: 10.1186/s12876-021-01857-8
Salina Ahmed 1 , Paul D Newton 1 , Omorogieva Ojo 1 , Lesley Dibley 1
Affiliation  

Prevalence of chronic gastrointestinal diseases has been rising amongst ethnic minority populations in Western countries, despite the first-generation migrants originating from countries of low prevalence. Differences caused by genetic, environmental, cultural, and religious factors in each context may contribute towards shaping experiences of ethnic minority individuals living with primary bowel conditions. This review aimed to explore the experiences of ethnic minority patients living with chronic bowel conditions. We conducted a systematic scoping review to retrieve qualitative, quantitative, and mixed methods studies from eight electronic databases, and manually searched reference lists of frequently cited papers. Fourteen papers met the inclusion criteria: focussing on inflammatory bowel disease, irritable bowel syndrome, and coeliac disease. Core themes were narratively analysed. South Asians had limited understanding of inflammatory bowel disease and coeliac disease, hindered by language and literacy barriers, particularly for older generations, suggesting that culturally relevant information is needed. Family support was limited, and Muslim South Asians referred to religion to understand and self-manage inflammatory bowel disease. Ethnic minority groups across countries experienced: poor dietary intake for coeliac disease and inflammatory bowel disease, cultural conflict in self-managing diet for inflammatory bowel disease which increased anxiety, and there was a need for better quality of, and access to, healthcare services. British ethnic minority groups experienced difficulties with IBD diagnosis/misdiagnosis. Cultural, religious, and social contexts, together with language barriers and limited health literacy influenced experiences of health inequalities for ethnic minority patients living with chronic bowel diseases.

中文翻译:

患有原发性慢性肠道疾病的少数族裔患者的经历:具有叙事综合的系统范围审查

尽管第一代移民来自低流行国家,但在西方国家的少数民族人群中,慢性胃肠道疾病的患病率一直在上升。在每种情况下,由遗传、环境、文化和宗教因素引起的差异可能有助于塑造患有原发性肠道疾病的少数族裔个体的经历。本综述旨在探讨患有慢性肠道疾病的少数民族患者的经历。我们进行了系统的范围审查,从八个电子数据库中检索定性、定量和混合方法研究,并手动搜索经常引用论文的参考文献列表。14 篇论文符合纳入标准:关注炎症性肠病、肠易激综合征和乳糜泻。对核心主题进行了叙事分析。南亚人对炎症性肠病和乳糜泻的了解有限,受语言和识字障碍的阻碍,尤其是对老一辈而言,这表明需要与文化相关的信息。家庭支持有限,穆斯林南亚人通过宗教来了解和自我管理炎症性肠病。各国的少数民族经历了:乳糜泻和炎症性肠病的饮食摄入不足,炎症性肠病自我管理饮食的文化冲突增加了焦虑,并且需要更好的质量和获得医疗保健服务的机会。英国少数民族在 IBD 诊断/误诊方面遇到了困难。文化、宗教和社会背景,
更新日期:2021-08-19
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