当前位置: X-MOL 学术Cardiol. Young › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Quality of life and emotional vulnerability in a national cohort of adolescents living with Fontan circulation
Cardiology in the Young ( IF 0.9 ) Pub Date : 2021-08-13 , DOI: 10.1017/s1047951121003188
Inger Bygland Grosch 1 , Brith Andresen 2 , Lien My Diep 3 , Trond H Diseth 4, 5 , Thomas Möller 1
Affiliation  

Introduction:

To investigate quality of life and mental health after Fontan completion, we aimed to characterise outcomes in a representative group of adolescent patients. The study was part of the pre-transition clinical work-up in adolescents with Fontan-type palliation of univentricular CHD. The programme covers the entire paediatric Fontan patient population in Norway.

Methods:

Our cross-sectional study included 42 adolescents with Fontan circulation aged 15–18. We recruited a control group of 29 healthy peers. Quality of life was measured by the Pediatric Quality of Life Inventory Questionnaire, while mental health was assessed with the Strength and Difficulties Questionnaire.

Results:

Fontan patients scored lower than healthy controls on the Pediatric Quality of Life Inventory total (p = 0.004), the physical (p < 0.001) and social (p = 0.001) functioning subscale, and the Strength and Difficulties Questionnaire subscale of emotional symptoms (p = 0.035). Compared to two of the healthy teens (7%), seven patients (16%) in the Fontan group scored as having impaired mental health (p = 0.224). The female/male ratio for individuals with impaired health was 7:2 (p = 0.003).

Conclusions:

Compared to healthy controls, adolescents after Fontan-type palliation in Norway have good health-related quality of life and mental health, despite having slightly lower score than healthy individuals, mainly in physical domains and school functioning. Compared to healthy controls and healthy teenagers, these adolescents have somewhat more emotional problems, and compared to male patients, female patients more often have impaired mental health.



中文翻译:


患有 Fontan 循环的全国青少年群体的生活质量和情绪脆弱性


 介绍:


为了调查 Fontan 完成后的生活质量和心理健康状况,我们旨在描述一组具有代表性的青少年患者的结果。该研究是单心室先心病 Fontan 型姑息治疗青少年过渡前临床检查的一部分。该计划涵盖挪威所有 Fontan 儿科患者群体。

 方法:


我们的横断面研究包括 42 名 15-18 岁患有 Fontan 循环的青少年。我们招募了 29 名健康同伴作为对照组。生活质量通过儿科生活质量调查问卷来衡量,而心理健康则通过力量和困难问卷来评估。

 结果:


Fontan 患者在儿科生活质量量表总分 (p = 0.004)、身体 (p < 0.001) 和社交 (p = 0.001) 功能分量表以及情绪症状的强度和困难问卷分量表上的得分低于健康对照组 ( p = 0.035)。与两名健康青少年 (7%) 相比,Fontan 组中有 7 名患者 (16%) 的心理健康状况受损 (p = 0.224)。健康受损个体的女性/男性比例为 7:2 (p = 0.003)。

 结论:


与健康对照组相比,挪威接受 Fontan 型姑息治疗后的青少年具有良好的健康相关生活质量和心理健康,尽管其得分略低于健康个体,主要是在身体领域和学校功能方面。与健康对照组和健康青少年相比,这些青少年存在更多的情绪问题,与男性患者相比,女性患者更常出现心理健康问题。

更新日期:2021-08-13
down
wechat
bug