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Family caregivers of rare disease: A survey on health-related quality of life in family caregivers for Gaucher disease patients in China
Molecular Genetics & Genomic Medicine ( IF 1.5 ) Pub Date : 2021-08-13 , DOI: 10.1002/mgg3.1760
Jiao Xu 1 , Han Bao 2 , Xinye Qi 1 , Jiahui Wang 1 , Hang Yin 1 , Chunyang Shang 3 , Rachel Leeyin Tan 4 , Qunhong Wu 1 , Weidong Huang 1
Affiliation  

Rare diseases affect the health-related quality of life (HRQoL) of patients and their family caregivers (FCs). However, limited evidence is available on the HRQoL of FCs of patients with Gaucher disease (GD). This study aimed to assess HRQoL and related factors among FCs of patients with GD in China.
更新日期:2021-09-23
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