Family caregivers of rare disease: A survey on health-related quality of life in family caregivers for Gaucher disease patients in China,Molecular Genetics & Genomic Medicine

当前位置： X-MOL 学术 › Mol. Genet. Genomic Med. › 论文详情

Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)

Family caregivers of rare disease: A survey on health-related quality of life in family caregivers for Gaucher disease patients in China
Molecular Genetics & Genomic Medicine ( IF 1.5 ) Pub Date : 2021-08-13 , DOI: 10.1002/mgg3.1760
Jiao Xu ₁ , Han Bao ₂ , Xinye Qi ₁ , Jiahui Wang ₁ , Hang Yin ₁ , Chunyang Shang ₃ , Rachel Leeyin Tan ₄ , Qunhong Wu ₁ , Weidong Huang ₁

Affiliation

Rare diseases affect the health-related quality of life (HRQoL) of patients and their family caregivers (FCs). However, limited evidence is available on the HRQoL of FCs of patients with Gaucher disease (GD). This study aimed to assess HRQoL and related factors among FCs of patients with GD in China.

更新日期：2021-09-23

点击分享查看原文

点击收藏

公开下载

阅读更多本刊最新论文本刊介绍/投稿指南11