A crowd-sourced Canadian platform that collects information across neurodevelopmental disabilities (NDDs) can (1) facilitate knowledge mobilization; (2) provide epidemiological data that can benefit knowledge, treatment, and advocacy; and (3) inform policy and resource allocation decisions. We obtained input from parents of children with NDDs about relevance and feasibility of questionnaire items as a first step to inform questionnaire development of a stakeholder-driven, national platform for data collection on children with NDDs.

中文翻译：

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为加拿大神经多样性平台的发展提供信息：对于神经发育障碍儿童的父母来说，什么是重要的？

一个收集神经发育障碍 (NDD) 信息的众包加拿大平台可以 (1) 促进知识动员；(2) 提供有助于知识、治疗和宣传的流行病学数据；(3) 为政策和资源分配决策提供信息。我们从患有 NDDs 的儿童的父母那里获得了关于问卷项目的相关性和可行性的意见，作为第一步，以告知利益相关者驱动的国家级 NDDs 儿童数据收集平台的问卷开发。