Interstitial lung disease (ILD) confers a high mortality and symptom burden, substantially impacting quality of life. Studies evaluating palliative care in ILD are rapidly expanding. Uniform outcome measures are crucial to assessing the impact of palliative care in ILD. This scoping review evaluates existing outcome measures in general health-related quality of life (HRQoL), physical health, mental health, social health and advance care planning (ACP) domains in patients with ILD. Articles in English with quantitative assessment of at least one measure of general HRQoL, physical health, mental health, social health or ACP in patients with ILD were included. Searches across three databases yielded 3488 non-duplicate articles. 23 met eligibility criteria and included three randomised controlled trials (RCTs) or secondary analysis of an RCT (13%), three cross-sectional studies or secondary analysis of cross-sectional study (13%), one prospective study (4%) and 16 retrospective studies (70%). Among eligible articles, 25 distinct instruments were identified. Six studies assessed general HRQoL (26%), 16 assessed physical health (70%), 11 assessed mental health (48%), six assessed social health (26%) and 16 assessed ACP (70%). The ability to compare results across studies remains challenging given the heterogeneity in outcome measures. Future work is needed to develop core palliative care outcome measures in ILD.

间质性肺病 (ILD) 具有高死亡率和症状负担，严重影响生活质量。评估 ILD 姑息治疗的研究正在迅速扩大。统一的结果测量对于评估姑息治疗对 ILD 的影响至关重要。本范围审查评估了 ILD 患者在一般健康相关生活质量 (HRQoL)、身体健康、心理健康、社会健康和预先护理计划 (ACP) 领域的现有结果测量。包括对 ILD 患者的至少一项一般 HRQoL、身体健康、心理健康、社会健康或 ACP 测量进行定量评估的英文文章。跨三个数据库的搜索产生了 3488 篇非重复的文章。23 项符合资格标准，包括三项随机对照试验 (RCT) 或一项 RCT 的二次分析 (13%)，三项横断面研究或横断面研究的二次分析（13%），一项前瞻性研究（4%）和 16 项回顾性研究（70%）。在符合条件的文章中，确定了 25 种不同的工具。六项研究评估一般 HRQoL (26%)，16 项评估身体健康 (70%)，11 项评估心理健康 (48%)，六项评估社会健康 (26%) 和 16 项评估 ACP (70%)。鉴于结果测量的异质性，跨研究比较结果的能力仍然具有挑战性。未来的工作需要制定 ILD 的核心姑息治疗结果措施。11 名评估心理健康 (48%)，6 名评估社会健康 (26%) 和 16 名评估 ACP (70%)。鉴于结果测量的异质性，跨研究比较结果的能力仍然具有挑战性。未来的工作需要制定 ILD 的核心姑息治疗结果措施。11 名评估心理健康 (48%)，6 名评估社会健康 (26%) 和 16 名评估 ACP (70%)。鉴于结果测量的异质性，跨研究比较结果的能力仍然具有挑战性。未来的工作需要制定 ILD 的核心姑息治疗结果措施。