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Perspectives on Remote Glucose Monitoring in Youth With Type 1 Diabetes
Journal of Pediatric Psychology ( IF 2.7 ) Pub Date : 2021-05-25 , DOI: 10.1093/jpepsy/jsab068
Ettya R Fremont 1 , Victoria A Miller 1, 2
Affiliation  

Objective Continuous glucose monitoring (CGM) has become increasingly popular among youth with type 1 diabetes (T1D). Used with CGM, remote monitoring (RM) gives caregivers real-time access to patients’ glucose values. Whereas RM may safeguard against hypo- and hyperglycemic events, little is known about how older children and adolescents, who are striving for independence, and their parents view the RM aspect of CGM. The goal of this study was to describe and explore parent and youth perceptions of RM. Methods Youth with T1D and their parents participated separately in semi-structured interviews 2 months after starting CGM. Questions focused on decisions to use and experiences with RM. Results Analysis of 43 parents and 41 youth (13.79 years ± 2.82) interviews revealed four themes, with 10 subthemes. Seven subthemes emerged in parent and youth interviews, and three emerged exclusively in parent interviews. The overarching themes included the impact of RM on (1) peace-of-mind, (2) parental anxiety, (3) communication; and addressed (4) technological limitations that prevented some from using RM. Regardless of youth age, youth and parents found comfort in parental knowledge of glucose values and parental abilities to assist youth (e.g., giving reminders to eat). Whereas RM could lead to conflicts due to excessive communication (e.g., texting), conflicts could be resolved through iterative parent-youth conversations. Conclusion RM may facilitate youth independence by providing a way for them to stay connected to their support system while acquiring developmentally appropriate skills. However, families should have iterative discussions about boundaries to mitigate parental over-involvement.

中文翻译:

青少年 1 型糖尿病患者远程血糖监测的观点

目的 连续血糖监测(CGM)在青少年 1 型糖尿病(T1D)患者中越来越流行。与 CGM 一起使用时,远程监测 (RM) 使护理人员可以实时访问患者的血糖值。尽管 RM 可以预防低血糖和高血糖事件,但对于努力独立的大龄儿童和青少年及其父母如何看待 CGM 的 RM 方面知之甚少。本研究的目的是描述和探索父母和青少年对 RM 的看法。方法 T1D 青少年及其父母在开始 CGM 后 2 个月分别参加半结构化访谈。问题集中在使用 RM 的决定和体验上。结果 对 43 名家长和 41 名青少年(13.79 岁 ± 2.82)访谈的分析揭示了 4 个主题,10 个子主题。七个子主题出现在家长和青少年访谈中,三个子主题仅出现在家长访谈中。总体主题包括 RM 对 (1) 安心、(2) 父母焦虑、(3) 沟通的影响;并解决了 (4) 阻止某些人使用 RM 的技术限制。无论青少年年龄如何,青少年和父母都对父母对葡萄糖值的了解和父母帮助青少年的能力(例如,提醒吃饭)感到安慰。虽然 RM 可能由于过度沟通(例如,发短信)而导致冲突,但冲突可以通过反复的亲子对话来解决。结论 RM 可以通过为他们提供一种与他们的支持系统保持联系同时获得适合发展的技能的方式来促进青年独立。然而,
更新日期:2021-05-25
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