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Family-centred care in early intervention: A systematic review of the processes and outcomes of family-centred care and impacting factors
Child: Care, Health and Development ( IF 1.9 ) Pub Date : 2021-07-29 , DOI: 10.1111/cch.12901
Elaine McCarthy 1, 2 , Suzanne Guerin 1
Affiliation  

Family-centred care (FCC) has been established as a best practice model for child disability services internationally. However, further empirical support is required to explore the operationalization and efficacy of FCC, in the absence of a universal practice model. This review aimed to identify the key processes and outcomes of FCC in early intervention (EI) settings and the factors that impact FCC. A systemic review was conducted exploring the processes and outcomes of FCC delivered to children predominantly aged 0–6 years with disabilities/suspected disabilities and families as part of EI or early services. The search procedure was informed by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines (Moher et al., 2009). Narrative analysis of data was guided by Braun and Clarke (2006, 2014). Data were presented as per the standards for reporting qualitative research (SRQR; O'Brien et al., 2014). Forty-two studies were included. The majority (90.5%) outlined the processes of FCC, with 59.5% of studies detailing outcomes. Processes were largely reported as qualitative data and/or subscales of the Measure of Processes of Care (MPOC; King et al., 1995), which were subsequently collated. Findings indicated eight key operational processes and corresponding outcomes. Variables that hinder or facilitate FCC included family/professional characteristics, family/service resources, and parent attitudes, engagement and agency. FCC was largely conceptualized as the application of services to children and their families. Critical perspectives on FCC are discussed. It is hoped this research will contribute to the development of a framework of FCC in EI to inform services provided to young children with complex needs and their families and future research.

中文翻译:

早期干预中的以家庭为中心的护理:对以家庭为中心的护理过程和结果以及影响因素的系统评价

以家庭为中心的护理 (FCC) 已成为国际上儿童残疾服务的最佳实践模式。然而,在缺乏通用实践模型的情况下,需要进一步的经验支持来探索 FCC 的可操作性和有效性。本综述旨在确定早期干预 (EI) 环境中 FCC 的关键过程和结果以及影响 FCC 的因素。进行了一项系统性审查,探索作为 EI 或早期服务的一部分,向主要是 0-6 岁残疾/疑似残疾儿童和家庭提供 FCC 的过程和结果。搜索程序由系统评价和元分析的首选报告项目 (PRISMA) 指南 (Moher et al., 2009) 提供信息。数据的叙述分析由 Braun 和 Clarke (2006, 2014) 指导。数据按照报告定性研究的标准(SRQR;O'Brien 等人,2014 年)呈现。纳入了 42 项研究。大多数 (90.5%) 概述了 FCC 的过程,59.5% 的研究详细说明了结果。过程主要作为定性数据和/或护理过程测量 (MPOC; King et al., 1995) 的子量表报告,随后进行了整理。调查结果表明了八个关键的操作过程和相应的结果。阻碍或促进 FCC 的变量包括家庭/专业特征、家庭/服务资源以及父母的态度、参与和代理。FCC 在很大程度上被概念化为对儿童及其家庭的服务应用。讨论了对 FCC 的批判性观点。
更新日期:2021-07-29
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