Study Objectives:

To assess the impact of COVID-19 related restrictions on narcolepsy type 1 (NT2), narcolepsy type 2 (NT2), and idiopathic hypersomnia (IH).

Methods:

Participants with NT1, NT2 and IH followed in a university hospital completed an online 78-question survey assessing demographic, clinical and occupational features of the population during the first COVID-19 related lockdown.

Results:

The 219 /851 (25.7%) respondents of the survey reported a mean increase of 1.2±1.9 hours (P<.001) in night sleep time, and a mean decrease of 1.0±3.4 points (P<.001) on the Epworth sleepiness scale during lockdown. Bedtime was delayed by 46.1% of participants and wakeup time was delayed by 59.6%, driven primarily by participants with IH. Teleworkers (but not in-person workers) reported a mean increase of 0.9±1.2 hours in night sleep (P <.001) and a mean decrease in sleepiness score of 1.6± 3.1 (P <.001). Cataplexy improved in 54.1% of participants with NT1. Sleepiness correlated with psychological wellness (R=0.3, P<.001). As many as 42.5% enjoyed the lockdown, thanks to reallocation of time usually spent commuting towards longer sleep time, hobbies and family time, and appreciated a freer napping schedule. Conversely, 13.2% disliked the lockdown, feeling isolation and psychological distress.

Conclusions:

Extended sleep time, circadian delay (in IH patients) and teleworking resulted in decreased symptoms of central hypersomnias. These findings suggest that people with IH, NT1 and NT2 may benefit from a decrease in social and professional constraints on sleep-wake habits, and support advocacy efforts aimed at facilitating workplace and schedule accommodations for this population.

中文翻译：

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大流行期间的睡眠：COVID-19 相关限制对发作性睡病和特发性嗜睡症的影响

学习目标：

评估 COVID-19 相关限制对 1 型发作性睡病 (NT2)、2 型发作性睡病 (NT2) 和特发性嗜睡症 (IH) 的影响。

方法：

在一所大学医院中，患有 NT1、NT2 和 IH 的参与者完成了一项包含 78 个问题的在线调查，以评估第一次与 COVID-19 相关的封锁期间人口的人口统计、临床和职业特征。

结果：

调查的 219 / 851 (25.7%) 名受访者报告夜间睡眠时间平均增加 1.2±1.9 小时 (P<.001)，Epworth 平均减少 1.0±3.4 分 (P<.001)锁定期间的困倦程度。46.1% 的参与者上床时间延迟，起床时间延迟 59.6%，这主要是由 IH 参与者造成的。远程工作人员（但不是现场工作人员）报告夜间睡眠时间平均增加 0.9±1.2 小时 (P <.001)，嗜睡评分平均减少 1.6±3.1 (P <.001)。54.1% 的 NT1 参与者的猝倒症有所改善。嗜睡与心理健康相关（R=0.3，P<.001）。多达 42.5% 的人喜欢封锁，这要归功于将通常花在通勤上的时间重新分配给更长的睡眠时间、爱好和家庭时间，并欣赏更自由的午睡时间表。相反，13。

结论：

延长睡眠时间、昼夜节律延迟（在 IH 患者中）和远程办公导致中枢性嗜睡症状减轻。这些发现表明，患有 IH、NT1 和 NT2 的人可能会受益于减少对睡眠-觉醒习惯的社会和职业限制，并支持旨在促进该人群工作场所和安排住宿的宣传工作。