“We Have All This Knowledge to Give, So Use Us as a Resource”: Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities,Journal of Adolescent and Young Adult Oncology

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“We Have All This Knowledge to Give, So Use Us as a Resource”: Partnering with Adolescent and Young Adult Cancer Survivors to Determine Consumer-Led Research Priorities
Journal of Adolescent and Young Adult Oncology ( IF 1.2 ) Pub Date : 2022-04-19 , DOI: 10.1089/jayao.2021.0052
Clarissa E Schilstra _{1,

2} , Ursula M Sansom-Daly _{1,

2,

3} , Maria Schaffer _{1,

2} , Joanna E Fardell _{1,

2,

4} , Antoinette C Anazodo _{1,

3,

5} , Geoffrey McCowage ₆ , Jamie I Fletcher _{1,

7} , Glenn M Marshall _{1,

5,

7,

8} , Jennifer Buchhorn-White ₈ , Michael Evtushenko ₈ , Toby N Trahair _{1,

5} , Sarah J Ellis _{1,

2,

9}

Affiliation

Purpose: Involvement of adolescent and young adult (AYAs) cancer survivors as consumers in research is increasingly encouraged, yet few studies have identified the feasibility and acceptability of methods used to involve them. We aimed to identify: (1) How feasible and acceptable is a consumer-driven, workshop-based research priority-setting approach? And (2) what research priorities do Australian AYA consumers endorse?

中文翻译：

“我们拥有所有这些知识可以提供，因此请将我们用作资源”：与青少年和年轻成人癌症幸存者合作确定以消费者为主导的研究重点

目的：越来越多地鼓励青少年和年轻成人 (AYA) 癌症幸存者作为消费者参与研究，但很少有研究确定用于让他们参与的方法的可行性和可接受性。我们旨在确定：（1）以消费者为导向、以研讨会为基础的研究重点设置方法的可行性和可接受性如何？(2) 澳大利亚 AYA 消费者支持哪些研究重点？

更新日期：2022-04-22

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