Research question

What is the current diet of women with endometriosis, in terms of adherence to dietary guidelines and use of diets, and what are the perceived effects of dietary modifications?

Design

In this online explorative observational study, the Dutch Healthy Diet 2015 index (DHD-15) and quality of life (QoL) with the Endometriosis Health Profile-30 questionnaire (EHP-30) were used to assess diet quality.

Results

The questionnaires were completed by 157 participants. Many participants made one or more dietary adaptations for their endometriosis, in the form of a specific diet (46.5%), with the use of dietary supplements (56.1%), with other dietary adjustments (64.3%), or all. Endometriosis patients had a significantly lower DHD-15 score, indicating a lower diet quality than a healthy reference group (P = 0.004). In the endometriosis group, diet users had a significantly higher total DHD-15 score than non-diet users (P < 0.0001). Diet quality was not correlated with QoL (Pearson's r = –0.010, P = 0.904). Many specific dietary adjustments (71.3%), however, were reported to reduce endometriosis pain-related symptoms. The removal of gluten, dairy or soy, as well as the addition of vegetables, showed the greatest perceived reductions of symptoms in participants.

Conclusions

Although no specific dietary adjustment was found to increase QoL, endometriosis patients do feel that dietary adjustments have a beneficial effect on their symptoms. Therefore, more research is needed to gain evidence about the specific effects of nutrients on endometriosis symptoms.

中文翻译：

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荷兰子宫内膜异位症患者的饮食质量和饮食变化的感知效果：一项观察性研究

研究问题

就遵守饮食指南和饮食使用而言，子宫内膜异位症女性目前的饮食是什么，以及饮食调整的感知效果是什么？

设计

在这项在线探索性观察研究中，使用了 2015 年荷兰健康饮食指数 (DHD-15) 和生活质量 (QoL) 以及子宫内膜异位症健康概况 - 30 问卷 (EHP-30) 来评估饮食质量。

结果

问卷由 157 名参与者完成。许多参与者针对子宫内膜异位症进行了一项或多项饮食调整，包括特定饮食（46.5%）、使用膳食补充剂（56.1%）、其他饮食调整（64.3%）或全部。子宫内膜异位症患者的 DHD-15 评分显着降低，表明饮食质量低于健康参考组（P  = 0.004）。在子宫内膜异位症组中，节食者的 DHD-15 总分显着高于非节食者（P < 0.0001）。饮食质量与生活质量无关（Pearson's r = –0.010, P = 0.904）。然而，据报道，许多特定的饮食调整 (71.3%) 可减少子宫内膜异位症疼痛相关症状。去除麸质、乳制品或大豆，以及添加蔬菜，表明参与者的症状减轻幅度最大。

结论

虽然没有发现特定的饮食调整可以增加生活质量，但子宫内膜异位症患者确实认为饮食调整对他们的症状有有益的影响。因此，需要更多的研究来获得有关营养素对子宫内膜异位症症状的具体影响的证据。