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The reporters’ agreement in assessing the quality of life of young people with intellectual disabilities
Research in Developmental Disabilities ( IF 2.9 ) Pub Date : 2021-07-22 , DOI: 10.1016/j.ridd.2021.104026
Ana Berástegui 1 , Angela Santos 1 , Graciela Suárez 1
Affiliation  

A good evaluation of the quality of life (QoL) of young people with disability is essential to detect, monitor and report their support needs in research, and individual, institutional and policy planning. The aim of this study is to evaluate the reporters’ agreement in the assessment of the QoL of young people with Intellectual Disabilities in transition to adulthood. Self and proxy-report version of INICO-FEAPS quality of life scale was used to assess 119 students of a post-compulsory educational program, being the proxy-report informed by one of their relatives. Results show poor intraclass correlations between informants. No discrepancies were found in the global QoL. However, small discrepancies were found for some dimensions. Young people’s reports were higher for self-determination, personal development and interpersonal relationships. On the contrary, relatives’ reports were higher for rights, material and physical wellbeing. The discrepancies in global QoL assessment were not related to student’s severity, IQ, diagnosis or parent’s gender. These findings underline the importance of young people’s participation in the assessment of their QoL as well as the convenience of using both kind of informants when taking appropriate decisions in educational contexts during transition to adulthood.



中文翻译:

记者在评估智障青少年生活质量方面的共识

对残疾青年的生活质量 (QoL) 进行良好评估对于发现、监测和报告他们在研究以及个人、机构和政策规划方面的支持需求至关重要。本研究的目的是评估报告者在评估智力障碍青年过渡到成年期的 QoL 方面的一致性。INICO-FEAPS 生活质量量表的自我和代理报告版本被用来评估 119 名接受义务教育后教育计划的学生,这是由他们的一位亲属告知的代理报告。结果显示线人之间的类内相关性较差。在全球 QoL 中没有发现差异。但是,在某些维度上发现了小的差异。年轻人在自决、个人发展和人际关系方面的报告更高。相反,亲属在权利、物质和身体健康方面的报告更高。全球生活质量评估的差异与学生的严重程度、智商、诊断或父母的性别无关。这些发现强调了年轻人参与评估他们的 QoL 的重要性,以及在过渡到成年期间在教育环境中做出适当决定时使用这两种信息提供者的便利性。

更新日期:2021-07-22
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