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What is the Experience of Parents During the Home Care Management of Children With Congenital Heart Disease, Following Cardiac Surgery? Findings From a Metasynthesis
The Family Journal ( IF 1.0 ) Pub Date : 2021-07-19 , DOI: 10.1177/10664807211023933
Federica Dellafiore 1 , Silvia Belloni 2 , Rosario Caruso 3 , Nathasha Udugampolage 3 , Serena Flocco 3 , Irene Baroni 3 , Sofia Colaceci 4 , Arianna Magon 3 , Gianluca Conte 5 , Federica Manco 6 , Sara Russo 6 , Giulia Villa 7 , Cristina Arrigoni 1
Affiliation  

The home management of children with congenital heart disease (CHD) in the postsurgical phase represents one of the most complex phases for their parents. To date, the information available in the scientific landscape regarding the experiences and difficulties faced by the parents of children with CHD during this phase is still lacking. Accordingly, the study aims to synthesize the available qualitative evidence on parents’ experience during the home care management of children with CHD after cardiac surgery. Two databases were systematically searched to identify qualitative studies relating to parental experience about the home care management of children with CHD after cardiac surgery. Studies were carried out using Noblit and Hare's meta-ethnographic approach. The search yielded 183 results. After applying the inclusion criteria, nine articles were included in the meta-synthesis. The included articles were analyzed following the meta-ethnography approach. Five main themes were identified: (a) psychological and emotional impact and daily challenges; (b) continuity of care; (c) loneliness, isolation, and the need for knowledge; (d) new parental role; (e) assistance and support. The role of parents in the postsurgical phase of children with CHD is essential. However, numerous psychological nuances and emotional contradictions emerged from the experience of parents involved in this phase. Further studies are needed to identify parenting health and psychosocial support improvement strategies at home.



中文翻译:

先天性心脏病患儿心脏手术后的家庭护理管理过程中,家长有何经验?综合合成的结果

先天性心脏病 (CHD) 患儿术后阶段的家庭管理对他们的父母来说是最复杂的阶段之一。迄今为止,有关 CHD 儿童的父母在这一阶段所面临的经历和困难的科学领域的可用信息仍然缺乏。因此,该研究旨在综合现有的关于父母在心脏手术后 CHD 儿童的家庭护理管理过程中的经验的定性证据。系统地搜索了两个数据库,以确定与父母对心脏手术后 CHD 儿童的家庭护理管理经验相关的定性研究。研究是使用 Noblit 和 Hare 的元人种学方法进行的。搜索产生了 183 个结果。应用纳入标准后,九篇文章被纳入元综合。纳入的文章按照元人种学方法进行分析。确定了五个主要主题:(a) 心理和情感影响以及日常挑战;(b) 护理的连续性;(c) 孤独、孤立和对知识的需要;(d) 新的家长角色;(e) 援助和支持。父母在冠心病儿童术后阶段的作用至关重要。然而,从参与这一阶段的父母的经历中,出现了许多心理上的细微差别和情感上的矛盾。需要进一步的研究来确定家庭养育健康和社会心理支持的改善策略。(a) 心理和情感影响以及日常挑战;(b) 护理的连续性;(c) 孤独、孤立和对知识的需要;(d) 新的家长角色;(e) 援助和支持。父母在冠心病儿童术后阶段的作用至关重要。然而,从参与这一阶段的父母的经历中,出现了许多心理上的细微差别和情感上的矛盾。需要进一步的研究来确定家庭养育健康和社会心理支持的改善策略。(a) 心理和情感影响以及日常挑战;(b) 护理的连续性;(c) 孤独、孤立和对知识的需要;(d) 新的家长角色;(e) 援助和支持。父母在冠心病儿童术后阶段的作用至关重要。然而,从参与这一阶段的父母的经历中,出现了许多心理上的细微差别和情绪上的矛盾。需要进一步的研究来确定家庭养育健康和社会心理支持的改善策略。参与这一阶段的父母的经历产生了许多心理上的细微差别和情感上的矛盾。需要进一步的研究来确定家庭养育健康和社会心理支持的改善策略。参与这一阶段的父母的经历产生了许多心理上的细微差别和情感上的矛盾。需要进一步的研究来确定家庭养育健康和社会心理支持的改善策略。

更新日期:2021-07-20
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