OBJECTIVES One of the most underrepresented public health populations is the U.S. Deaf community-a minority group of 500,000 + individuals who communicate using American Sign Language (ASL). Research on Deaf health outcomes is significantly lacking due to inaccessible research procedures and mistrust of researchers that stems from historical mistreatment of Deaf people (i.e., Audism). METHODS Following the Truth and Reconciliation Model, we hosted three Deaf community forums between October and November 2016 across New England. We invited attendees to share their experiences in the research world and make recommendations about how researchers can better include Deaf people in their studies. A select group of hearing researchers served as representatives of the research community and to issue a formal apology on behalf of this community. RESULTS Forum attendees (n = 22; 5% racial/ethnic minority; 59% female) emphasized the following themes: Research conducted within general population samples is not an activity in which Deaf people can or will be included; a general mistrust of hearing people, including hearing researchers; researchers' frequent failure to communicate study results back to the Deaf community or the community-at-large; and a tendency of researchers to directly benefit from data provided by Deaf participants, without making any subsequent efforts to return to the community to give back or provide useful intervention. CONCLUSIONS Many injustices and forms of mistreatment are still ongoing; therefore, we recognize that our team's efforts to foster an open dialogue between the research community and the Deaf community must be an ongoing, iterative practice. (PsycInfo Database Record (c) 2023 APA, all rights reserved).

中文翻译：

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应用真相与和解模型让聋哑手语用户有意义地参与研究过程。


目标 公共卫生人群中代表性最不足的群体之一是美国聋人社区，这是一个由 500,000 多人组成的少数群体，使用美国手语 (ASL) 进行交流。由于历史上对聋人的虐待（即听力障碍），研究程序难以实现和对研究人员的不信任，因此对聋人健康结果的研究严重缺乏。方法 按照真相与和解模型，我们于 2016 年 10 月至 11 月期间在新英格兰举办了三场聋人社区论坛。我们邀请与会者分享他们在研究领域的经验，并就研究人员如何更好地将聋人纳入他们的研究提出建议。一组精选的听力研究人员担任研究界的代表，并代表该界发出正式道歉。结果 论坛与会者（n = 22；5% 为少数族裔；59% 为女性）强调了以下主题： 在一般人群样本中进行的研究不是一项可以或将包括聋人的活动；对听力正常的人普遍不信任，包括听力研究人员；研究人员经常未能将研究结果传达给聋人社区或整个社区；研究人员倾向于直接从聋人参与者提供的数据中受益，而无需做出任何后续努力返回社区以回馈或提供有用的干预。结论 许多不公正和虐待形式仍然存在；因此，我们认识到，我们的团队促进研究界和聋人社区之间公开对话的努力必须是持续的、反复的实践。 （PsycInfo 数据库记录 (c) 2023 APA，保留所有权利）。