当前位置: X-MOL 学术Contemporary Family Therapy › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
The Experience of Distress and Coping Among Young Adults with Cancer and Their Caregivers
Contemporary Family Therapy ( IF 1.0 ) Pub Date : 2021-07-17 , DOI: 10.1007/s10591-021-09592-8
Jennifer Hodgson 1 , Angela Lamson 1 , Emily Tucker 1 , Andrew Brimhall 1 , C. Suzanna Lea 1 , Irina Kolobova 2 , Jason Brinkley 3
Affiliation  

Adolescent and young adult (AYA) patients diagnosed with cancer, and their caregivers, experience a wide range of biopsychosocial stressors. The systemic transactional model Bodenmann in Swiss J Psychol 54: 34–49, 1995 posits that distress and coping are interrelated when close relationships are faced with a shared stressor. This study’s purpose was to understand the interrelated nature of distress and coping among AYA cancer patients and their caregivers. The research questions were: (a) What are the within sample and dyadic outcomes associated with distress and coping strategies among matched AYA oncology patients and caregivers? and (b) To what extent will patient and caregiver engagement predict patient and caregiver distress, as well as the patient problem list? A descriptive, cross-sectional design was utilized to collect data from 19 matched patient-caregiver dyads. Outcome variables included: (a) distress, (b) patient perceived problems, and (c) perceived stress. Predictor variables included: (a) coping styles, (b) relational assessment, and (c) caregiver burden. Actor-partner interdependence modeling revealed: (a) patients’ and caregivers’ use of engagement style coping strategies has a positive impact on patients’ distress, while caregivers’ use of engagement style coping strategies also has benefits for their own distress, (b) caregivers’ use of engagement style coping strategies may help reduce patients’ endorsement of biopsychosocial or practical problems, and (c) greater use of disengagement style coping strategies may decrease caregivers’ endorsement of issues included on the patient’s problem list. Future researchers are recommended to further investigate cancer as a relational illness. Clinicians and health policy makers are encouraged to develop policies and protocols toward treating the relational unit as the standard of care rather than as the exception.



中文翻译:

年轻癌症患者及其照顾者的痛苦和应对经历

被诊断出患有癌症的青少年和青年 (AYA) 患者及其护理人员会经历各种生物心理社会压力。Swiss J Psychol 54: 34-49, 1995 中的系统交易模型 Bodenmann 认为,当亲密关系面临共同的压力时,痛苦和应对是相互关联的。本研究的目的是了解 AYA 癌症患者及其照顾者之间痛苦和应对的相互关联性质。研究问题是:(a) 在匹配的 AYA 肿瘤患者和护理人员中,与痛苦和应对策略相关的样本内和二元结果是什么?(b) 患者和护理人员的参与在多大程度上可以预测患者和护理人员的痛苦以及患者问题清单?一个描述性的,横断面设计用于从 19 个匹配的患者-护理人员二人组中收集数据。结果变量包括:(a)痛苦,(b)患者感知的问题,以及(c)感知的压力。预测变量包括:(a) 应对方式,(b) 关系评估,和 (c) 照顾者负担。演员-伴侣相互依赖模型显示:(a)患者和护理人员使用参与式应对策略对患者的痛苦有积极影响,而护理人员使用参与式应对策略也对他们自己的痛苦有好处,(b)照顾者使用参与式应对策略可能有助于减少患者对生物心理社会或实际问题的认可,并且(c)更多地使用脱离式应对策略可能会减少照顾者对患者问题列表中问题的认可。建议未来的研究人员进一步研究癌症作为一种相关疾病。鼓励临床医生和卫生政策制定者制定政策和协议,将相关单位视为护理标准而不是例外。

更新日期:2021-07-18
down
wechat
bug