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Metaphors that shape parents' perceptions of effective communication with healthcare practitioners following child death: a qualitative UK study
medRxiv - Pediatrics Pub Date : 2021-07-10 , DOI: 10.1101/2021.07.08.21259704
Sarah Turner , Jeannette Littlemore , Annie Topping , Eloise Parr , Julie Taylor

Objectives To offer an interpretation of bereaved parents' evaluations of communication with healthcare practitioners surrounding the death of a child. Design Interpretative qualitative study employing thematic and linguistic analyses of metaphor embedded in interview data. Setting England and Scotland. Participants 24 bereaved parents (21 women, 3 men) Methods Participants were recruited through the True Colours Trust website and mailing list, similar UK charities, and word of mouth. Following interviews in person or via video-conferencing platforms (Skype/Zoom), transcripts first underwent thematic and subsequently linguistic analyses supported by Nvivo. A focused analysis of metaphors used by the parents was undertaken allow in-depth interpretation of how they conceptualised their experiences. Results The findings illuminate the ways parents experienced communication with healthcare practitioners surrounding the death of a child. They show how their evaluations of effective care relate to the experience of the bereavement itself, as expressed through metaphor. We identified three broad themes: (1) Identity (2) Emotional and Physical Response(s) and (3) Time. Successful communication from healthcare practitioners takes account of parents' experiences related to these themes. Conclusions This study suggests that healthcare practitioners when communicating with bereaved parents need to recognise, and seek to comprehend, the ways in which the loss impacts upon an individual's identity as a parent, the 'physical' nature of the emotions that can be unleashed, and the ways in which the death of a child can alter their metaphorical conceptions of time.

中文翻译:

塑造父母对儿童死亡后与医疗保健从业者有效沟通的看法的隐喻:一项定性英国研究

目的 解释失去亲人的父母对与儿童死亡相关的医疗保健从业者的沟通的评估。设计 解释性定性研究采用嵌入在访谈数据中的隐喻的主题和语言分析。设置英格兰和苏格兰。参与者 24 位失去亲人的父母(21 位女性,3 位男性) 方法 通过 True Colors Trust 网站和邮件列表、类似的英国慈善机构和口耳相传来招募参与者。在面对面或通过视频会议平台(Skype/Zoom)采访后,笔录首先接受了 Nvivo 支持的主题分析和随后的语言分析。对父母使用的隐喻进行了重点分析,以便深入解释他们如何概念化他们的经历。结果 调查结果阐明了父母与医疗保健从业者就儿童死亡进行交流的方式。他们展示了他们对有效护理的评估如何与丧亲经历本身相关,正如通过隐喻所表达的那样。我们确定了三个广泛的主题:(1)身份(2)情绪和身体反应和(3)时间。医疗保健从业者的成功沟通考虑了与这些主题相关的父母的经验。结论 这项研究表明,医疗保健从业者在与失去亲人的父母沟通时需要认识到并试图理解损失对个人作为父母的身份的影响方式,可以释放的情绪的“身体”性质,
更新日期:2021-07-12
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