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Formative Evaluation of the Families SHARE Disease Risk Tool among Low-Income African Americans
Public Health Genomics ( IF 1.3 ) Pub Date : 2021-07-07 , DOI: 10.1159/000517309
Kayla de la Haye 1 , Calandra Whitted 2, 3 , Laura M Koehly 2
Affiliation  

Introduction: Family Health Histories (FHH) have been endorsed by the surgeon general as a powerful yet underutilized tool for identifying individuals at risk for complex chronic diseases such as diabetes, heart disease, and cancer. FHH tools provide a mechanism for increasing communication about disease history and motivating behavior change to reduce disease risk. A critical gap in translation efforts includes a lack of research that adapts and evaluates tools for low-income, minority populations who experience disparities in chronic disease. Methods: This study is a formative mixed-methods evaluation of an evidence-based FHH intervention called “Families SHARE” among African Americans residing in low-income neighborhoods. Participants (N = 51) completed assessments before and 6 weeks after receiving the intervention, including surveys and focus groups. We evaluated (a) their use, understanding, and perceived value of the tool; (b) if the intervention led to increased intentions to adopt disease risk-reducing behaviors among those with heightened disease risk, given their FHH; and (c) acceptability of and recommendations for the tool. Results: The quantitative and qualitative data indicated that this population valued and used the tool, and it prompted communication about FHH with family, friends, and others. Receipt of the intervention resulted in mixed accuracy of their perceived disease risk, and it did not shift intentions to change health behaviors. Qualitative data provide insights for future iterations of the Families SHARE tool. Conclusion: Families SHARE is an engaging FHH tool that can be further tailored to optimize its value and benefits for low-income African Americans.
Public Health Genomics


中文翻译:

低收入非洲裔美国人家庭共享疾病风险工具的形成性评估

简介:家庭健康史 (FHH) 已被外科医生认可为一种强大但未被充分利用的工具,可用于识别有患糖尿病、心脏病和癌症等复杂慢性疾病风险的个体。FHH 工具提供了一种机制,可以增加有关疾病史的交流和激励行为改变以降低疾病风险。翻译工作的一个关键差距包括缺乏研究来调整和评估针对慢性病差异的低收入少数民族人口的工具。方法:本研究是对居住在低收入社区的非裔美国人中称为“家庭共享”的基于证据的 FHH 干预的形成性混合方法评估。参与者( N= 51) 在接受干预之前和之后 6 周完成评估,包括调查和焦点小组。我们评估了 (a) 他们对该工具的使用、理解和感知价值;(b) 考虑到他们的 FHH,如果干预措施导致疾病风险较高的人更愿意采取降低疾病风险的行为;(c) 该工具的可接受性和建议。结果:定量和定性数据表明,该人群重视和使用该工具,并促进与家人、朋友和其他人就 FHH 进行交流。接受干预导致他们感知的疾病风险的准确性参差不齐,并且没有改变改变健康行为的意图。定性数据为 Families SHARE 工具的未来迭代提供了见解。结论: Families SHARE 是一种引人入胜的 FHH 工具,可以进一步定制以优化其对低收入非裔美国人的价值和利益。
公共卫生基因组学
更新日期:2021-07-07
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