The death of a child is a tragic, devastating event with enormous emotional and relational impact on the family unit. Parental changes are significant, encompassing the psychological, physical, spiritual, and interpersonal realms. Little bereavement research has focused on the crucial familial role of parenting or the relationship between bereaved parents and their surviving children after another child’s death. A noteworthy gap likewise exists in current literature regarding the experience of parenting within families who suffered the death of a child due to an extended, life-limiting illness such as cancer. This interpretative phenomenological analysis addresses the gap by exploring the lived experience of those who parent surviving children after their child’s cancer death. Seven mothers and four fathers (n = 11) across the United States participated in video or face-to-face semi-structured individual interviews. Parents had a range of 1–2 surviving children whose ages spanned 23 months-18 years (M = 8.27; SD = 5.07) at the time of their sibling’s death (M = 5.43 years earlier; SD = 3.17). Data analysis revealed two primary themes. “A New Mind” denotes bereaved parents’ new, contrasting mindsets regarding self-view, daily motivators, perceived locus of control, perspective, boundaries for children, direction of focus, and outside relationships. “Be Beside Me” highlights parents’ deep desire that others come alongside them by validating their emotions and experience and providing opportunities for family renewal. Clinicians working with bereaved families should have awareness of and consider parents’ changed perspectives, challenges, and supportive needs in order to deliver family-centered care and enrich existing services and support programs.

孩子的死亡是一个悲惨的、毁灭性的事件，对家庭单位产生巨大的情感和关系影响。父母的变化是显着的，包括心理、身体、精神和人际关系领域。很少有关于丧亲之痛的研究集中在养育子女的关键家庭角色或失去亲人的父母与其在另一个孩子去世后幸存的孩子之间的关系上。在当前的文献中同样存在一个值得注意的差距，关于在因癌症等延长的、限制生命的疾病而遭受儿童死亡的家庭中养育子女的经历。这种解释性的现象学分析通过探索那些在孩子癌症死亡后养育幸存孩子的人的生活经历来解决这一差距。七母四父（n = 11）在美国各地参加了视频或面对面的半结构化个人访谈。父母有 1-2 个幸存的孩子， 在他们兄弟姐妹去世时（M  = 5.43 年前；SD）的年龄跨度为 23 个月至 18 岁（M  = 8.27；SD = 5.07） = 3.17）。数据分析揭示了两个主要主题。“新思维”表示失去亲人的父母在自我观、日常动机、感知控制点、视角、儿童界限、关注方向和外部关系方面的新的、对比鲜明的心态。“在我身边”通过验证他们的情绪和经历并为家庭重建提供机会，突出了父母对他人与他们一起的深切渴望。与失去亲人的家庭一起工作的临床医生应该意识到并考虑父母改变的观点、挑战和支持需求，以提供以家庭为中心的护理并丰富现有的服务和支持计划。