Patient advocates who understand scientific methods and proper research processes can bring valuable perspectives to modern research. This is particularly important in rare cancers like sarcoma as each patient becomes a precious source of information to better diagnose, understand the biology and the effect of treatment. Reviewing approaches used by other cancer patient advocates can provide valuable insights to develop effective research advocates in rare cancers such as sarcoma.

中文翻译：

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患者有意义地参与罕见癌症研究：以肉瘤为例

了解科学方法和适当研究过程的患者倡导者可以为现代研究带来有价值的观点。这在肉瘤等罕见癌症中尤为重要，因为每位患者都成为更好地诊断、了解生物学和治疗效果的宝贵信息来源。回顾其他癌症患者倡导者使用的方法可以提供有价值的见解，以在罕见癌症（如肉瘤）中培养有效的研究倡导者。