AIM To evaluate patient engagement processes in the development of a new health coaching intervention for parents of children with suspected developmental delays. METHOD A cross-sectional mixed-method study design was used. Researchers (n=18) and patient-partners (n=9) were surveyed using the Public and Patient Engagement Evaluation Tool (PPEET) in areas of: (1) communication/supports for participation; (2) sharing views/perspectives; (3) impacts/influence of engagement initiative; and (4) final thoughts/satisfaction. Descriptive statistics and an inductive thematic-based approach were used to analyse the data. RESULTS For both study groups, high agreement, with responses largely ranging between 'agree' to 'strongly agree', was noted on all four sections of the PPEET. Qualitative reports reflected that patient engagement was important, meaningful, and had a significant impact on the quality of the project and on the professional development of researchers in their understanding and use of patient-oriented methodology. Patient-partners noted challenges related to having realistic deadlines in providing feedback and a lack of a broader range of representation among members. INTERPRETATION The benefits and challenges of applying patient-oriented strategies to a multicentre trial were highlighted. These will be used to enhance our engagement processes.

中文翻译：

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患者参与针对疑似发育迟缓儿童家长的在线辅导干预

目的 评估患者在为疑似发育迟缓儿童的父母制定新的健康指导干预的过程中的参与过程。方法 使用横断面混合方法研究设计。研究人员 (n=18) 和患者伙伴 (n=9) 使用公众和患者参与评估工具 (PPEET) 在以下领域进行了调查：(1) 交流/参与支持；(2) 分享观点/观点；(3) 参与倡议的影响/影响；(4) 最后的想法/满意。使用描述性统计和基于归纳主题的方法来分析数据。结果 对于两个研究组，在 PPEET 的所有四个部分都注意到高度一致，反应范围在“同意”到“非常同意”之间。定性报告反映患者参与很重要、有意义，并且对项目质量和研究人员在理解和使用以患者为导向的方法论方面的专业发展产生了重大影响。患者伙伴指出，在提供反馈方面存在现实的最后期限以及成员之间缺乏更广泛的代表权方面的挑战。解释强调了将以患者为导向的策略应用于多中心试验的好处和挑战。这些将用于增强我们的参与流程。患者伙伴指出，在提供反馈方面存在现实的最后期限以及成员之间缺乏更广泛的代表权方面的挑战。解释强调了将以患者为导向的策略应用于多中心试验的好处和挑战。这些将用于增强我们的参与流程。患者伙伴指出，在提供反馈方面存在现实的最后期限以及成员之间缺乏更广泛的代表权方面的挑战。解释强调了将以患者为导向的策略应用于多中心试验的好处和挑战。这些将用于增强我们的参与流程。